Recent Activity
Activity stream for all registered members at Science for ME.
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Peter Trewhitt liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 7:18 AM -
Peter Trewhitt liked Sean's post in the thread ETUDE: Encompassing Training in fUnctional Disorders across Europe.
"An etude is a short, tricky tune that a musician plays mainly for practice or to demonstrate skill."
Jun 12, 2024 at 7:18 AM -
Peter Trewhitt liked SNT Gatchaman's post in the thread ‘I could bench-press 100kg. Now, I can’t walk’: Lucy’s life with long Covid.
Another in the series — Childhood, interrupted: 12-year-old Toby’s life with long Covid
Jun 12, 2024 at 7:18 AM -
Peter Trewhitt liked Sean's post in the thread Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS.
A particularly nasty and gutless form of bigotry, that is getting very close to hate crimes at times. Sometimes even crossing that line,...
Jun 12, 2024 at 7:17 AM -
Peter Trewhitt liked forestglip's post in the thread Modern environmental factors.
If it turns out risk of ME or some other chronic illness is increased by chemicals which circulate in the blood and continue to harm as...
Jun 12, 2024 at 7:17 AM
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Peter Trewhitt liked Sean's post in the thread Modern environmental factors.
For me the big indisputable weather correlation is humid heat. Dry heat, within reason, is manageable. But when it gets humid (above...
Jun 12, 2024 at 7:16 AM -
Peter Trewhitt liked bobbler's post in the thread What can we learn from the Post Office scandal publicity (including TV)?.
I think it needs a few different angles, and suspect the less documentary ones are the breakthrough points. We are slightly different to...
Jun 12, 2024 at 7:16 AM -
Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
If you wanted to push it and get really proactive then it could be used by better GPs to signpost help and when to think of it. The...
Jun 12, 2024 at 7:15 AM -
Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yep. And also if they took the opportunity to have this bit in then it might mean those who have difficult people at home at least have...
Jun 12, 2024 at 7:15 AM -
Peter Trewhitt liked Sean's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
There was a 2.5 year long-term follow-up paper. Some of the control group did cross-over and try CBT/GET after the trial ended. But...
Jun 12, 2024 at 7:14 AM -
bobbler liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 7:13 AM -
Lou B Lou liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Nope, my asthma yearly review specifically includes a plan, and written so you take it away, for when you have an asthma attack. And the...
Jun 12, 2024 at 7:12 AM -
Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...
Jun 12, 2024 at 7:11 AM -
NelliePledge liked Amw66's post in the thread United Kingdom: Cases of people with ME/CFS with severe feeding problems, in the media.
Significant thread on X from Dr Claire Taylor [MEDIA] If someone is bedbound with #longcovid & hospitalised, withholding urine...
Jun 12, 2024 at 7:07 AM -
Lou B Lou liked Robert 1973's post in the thread What can we learn from the Post Office scandal publicity (including TV)?.
In the drama (part 4) there is a scene in a pub with Bob, Alan and Jo. Jo asks Bob again where her money went. He replies:“I think, Jo –...
Jun 12, 2024 at 7:07 AM
