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Joan Crawford liked Sean's post in the thread UK: University College London hospitals (NHS).

This.

Lou B Lou liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Maybe there should be an annual review PROMS

alktipping liked MrMagoo's post in the thread UK: University College London hospitals (NHS).

alktipping liked Wyva's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.

I kind of skimmed through it. Is it really just two pages? I somehow thought the interim guidance had more info than this one, but I may...

boolybooly liked Andy's post in the thread Stigmatisation in clinical consultations for persistent physical symptoms/functional disorders: A best fit framework synthesis, 2024, Treufeldt et al.

Highlights In consultations for PPS/FDs, stigmatisation can occur in various ways in the communication process. Current models do not...

alktipping liked Sean's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.

That is encouraging.

alktipping liked ahimsa's post in the thread USA: Centers for Disease Control (CDC) - Post Covid Conditions: Interim Guidance, June 2021, updated June 2024.

#MEAction article from June 16: CDC releases post-COVID guidance: 4 takeaways for ME/CFS Here are the 4 takeaways listed: 1. ME/CFS...

alktipping liked DigitalDrifter's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.

https://www.s4me.info/threads/office-of-national-statistics-prevalence-of-ongoing-symptoms-following-coronavirus-covid-19-infection-in-th...

Lindberg liked SNT Gatchaman's post in the thread NIH study - where to start?.

#noteverytest. Eg I didn't see any mention of vasopressin. The below poster abstract was published after the NIH paper, but...

alktipping liked Simon M's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.

I'm not sure how to interpret this estimate of there being 20-30k people out of work due to LC at July 2022. The study has many great...

alktipping liked Lou B Lou's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.

I was deeply concerned about the misconception of PEM by a researcher that appeared on this Forum - that PEM can appear for a few minutes.

alktipping liked Peter Trewhitt's post in the thread Concerns About The ME Association's Prevalence Figures For ME & Long Covid.

In another thread @Trish, I think, did an excellent post distinguishing the various post activity fatigue states that are dangerously...

Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.

Thanks Joan. Very good reply.

Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.

I really, really hope you ge a polite apology. I’m sure they think they’re being brilliantly inclusive. I wonder whether they would be...

forestglip replied to the thread Loss of smell and taste.

I decided to switch to essential oils as the odor, so that it can actually dissolve evenly in the solvent. And for the solvent, I used...