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Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I am finding the idea of discussing the pros and cons /potential catches (my biggest concern is understanding the power base behind GP...

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Yes, I was thinking it could be done by a practice nurse, like the diabetes, asthma etc

Peter Trewhitt liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

My GP practice does both my reviews, even though I'm also reviewed by the rheumatology team. I think it's quite normal for primary care...

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Maybe there should be an annual review PROMS

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Care and support plans...

Peter Trewhitt liked MrMagoo's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Once a year review in primary care is the NICE recommendation...

Peter Trewhitt liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

If those are trained well, and not from some guideline eg put together by Clare Gerada, then it gets around clinics being able to claim...

Peter Trewhitt liked Kitty's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...

MrMagoo liked Kitty's post in the thread : TV casting call for people living with ME/CFS.

Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few...

Peter Trewhitt liked FMMM1's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

If a public service [NHS England] is launched then it's reasonable to ask that appropriate monitoring is included --- in fact that's...

MrMagoo liked bobbler's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I am finding the idea of discussing the pros and cons /potential catches (my biggest concern is understanding the power base behind GP...

MrMagoo replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

I was being somewhat facetious, they wouldn’t care for reported outcomes 3 years after last being seen in the clinic. The PROMS are to...

SNT Gatchaman attached a file to the thread Opinion Challenges and opportunities in long COVID research, 2024, Rebecca E. Hamlin and Catherine A. Blish.

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SNT Gatchaman posted a new thread.

Opinion Challenges and opportunities in long COVID research, 2024, Rebecca E. Hamlin and Catherine A. Blish

Challenges and opportunities in long COVID research Rebecca E. Hamlin; Catherine A. Blish Long COVID (LC) is a condition in which...

Forum: Long Covid research