1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.

17 Nov 2017 | UK Biobank now recruiting ME/CFS patients to give blood samples

Discussion in 'BioMedical ME/CFS News' started by Sasha, Nov 17, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    757
    Likes Received:
    4,700
    Location:
    UK
    and:

    Code:
    https://twitter.com/mecfsbiobank/status/931096173179539458


    What I don't know is whether PWME outside London can participate.

    Do you know, @Jonathan Edwards?
     
    Dolphin, Binkie4, Valentijn and 5 others like this.
  2. Andy

    Andy Administrator Staff Member

    Messages:
    940
    Likes Received:
    5,425
    Location:
    Hampshire, UK
    I've emailed them.
     
    Dolphin, Binkie4, Valentijn and 7 others like this.
  3. Cheshire

    Cheshire Senior Member (Voting Rights)

    Messages:
    274
    Likes Received:
    2,612
  4. Andy

    Andy Administrator Staff Member

    Messages:
    940
    Likes Received:
    5,425
    Location:
    Hampshire, UK
    To quote myself, the reply I've received is
     
  5. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    162
    Likes Received:
    951
    @Andy
    Is there an email address for the biobank?
     
    Dolphin and Andy like this.
  6. Andy

    Andy Administrator Staff Member

    Messages:
    940
    Likes Received:
    5,425
    Location:
    Hampshire, UK
    mecfsbiobank@lshtm.ac.uk but also in Sasha's original post ('behind' the blue text "contact us").
     
  7. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    162
    Likes Received:
    951
    Thanks Andy. Have contacted them.
     
    MEMarge, Sasha and Andy like this.
  8. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    162
    Likes Received:
    951
    Had a very prompt reply from the research nurse at the biobank requesting information giving criteria I can't comply with.
    1) need to be younger than 58 (18-58)
    2) must not be on steroids or antivirals ( affecting immune system)
    3) address must be given. I might fit there since I am in London
    4) must not have cancer or heart disease or major psych illness
    5) am I housebound?

    There was also a note that made clear that everyone fitting the criteria may not be suitable.
    @Andy
     
  9. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    162
    Likes Received:
    951
    Confirmation received this morning from the research nurse that I am not suitable to provide samples for biobank. It was as I expected.

    I had also asked whether samples could be collected at home because that hadn't been fully stated. They can, funded by the NIH grant.

    This is great because, assuming they get plenty of offers of samples, they will be able to select across the severity range, assuming that this is what they want to study.
     
  10. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    162
    Likes Received:
    951

Share This Page