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17 Nov 2017 | UK Biobank now recruiting ME/CFS patients to give blood samples

Discussion in 'BioMedical ME/CFS News' started by Sasha, Nov 17, 2017.

  1. Sasha

    Sasha Senior Member (Voting Rights)

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    and:

    Code:
    https://twitter.com/mecfsbiobank/status/931096173179539458


    What I don't know is whether PWME outside London can participate.

    Do you know, @Jonathan Edwards?
     
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  2. Andy

    Andy Committee Member & Outreach

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    I've emailed them.
     
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  3. Cheshire

    Cheshire Moderator Staff Member

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  4. Andy

    Andy Committee Member & Outreach

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    To quote myself, the reply I've received is
     
  5. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    @Andy
    Is there an email address for the biobank?
     
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  6. Andy

    Andy Committee Member & Outreach

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    mecfsbiobank@lshtm.ac.uk but also in Sasha's original post ('behind' the blue text "contact us").
     
  7. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Thanks Andy. Have contacted them.
     
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  8. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Had a very prompt reply from the research nurse at the biobank requesting information giving criteria I can't comply with.
    1) need to be younger than 58 (18-58)
    2) must not be on steroids or antivirals ( affecting immune system)
    3) address must be given. I might fit there since I am in London
    4) must not have cancer or heart disease or major psych illness
    5) am I housebound?

    There was also a note that made clear that everyone fitting the criteria may not be suitable.
    @Andy
     
  9. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    Confirmation received this morning from the research nurse that I am not suitable to provide samples for biobank. It was as I expected.

    I had also asked whether samples could be collected at home because that hadn't been fully stated. They can, funded by the NIH grant.

    This is great because, assuming they get plenty of offers of samples, they will be able to select across the severity range, assuming that this is what they want to study.
     
  10. Binkie4

    Binkie4 Senior Member (Voting Rights)

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