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Advocacy Projects and Campaigns

Page 3 of 15
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  1. Andy

    Survey: EFNA: Assessing diagnosis and care pathways of people living with neurological disorders in Europe, closes 19th April 2022

    Andy, Mar 8, 2022
    Replies:
    2
    Views:
    794
    Dolphin
    Oct 5, 2022
  2. RoseE

    M.E. and me (My Story as a Teen with ME/CFS) - Youtube Channel

    RoseE, Aug 18, 2022
    Replies:
    3
    Views:
    910
    Sly Saint
    Aug 19, 2022
  3. bobbler

    marketing I like for women's sport - could this sort of thing work for ME?

    bobbler, Aug 4, 2022
    Replies:
    0
    Views:
    777
    bobbler
    Aug 4, 2022
  4. Sly Saint

    Problematic training courses - please add

    Sly Saint, Jan 5, 2018 ... 2 3
    Replies:
    52
    Views:
    7,737
    Sly Saint
    Jul 7, 2022
  5. Sly Saint

    Off-Kilter Podcast: “The Long Haul”: Inside the Patient Advocacy Revolution of the COVID Era (Part 1 of an #ADA2022 Special)

    Sly Saint, Jul 2, 2022
    Replies:
    0
    Views:
    697
    Sly Saint
    Jul 2, 2022
  6. Andy

    Exploration of the idea of a register of patient advocates

    Andy, May 27, 2022 ... 2
    Replies:
    23
    Views:
    1,576
    MSEsperanza
    Jun 7, 2022
  7. Tara Green

    Help with Advocating - responding to claims that ME is a psychological illness

    Tara Green, May 25, 2022
    Replies:
    16
    Views:
    1,344
    Tara Green
    May 31, 2022
  8. Sly Saint

    USA: #MEAction: Email Doctor Unger about the Misinformation at CDC

    Sly Saint, May 28, 2022
    Replies:
    0
    Views:
    675
    Sly Saint
    May 28, 2022
  9. Andy

    UK: Priority Setting Partnership for ME/CFS

    Andy, Mar 10, 2020 ... 10 11 12
    Replies:
    232
    Views:
    23,851
    bobbler
    May 21, 2022
  10. Phoebe

    ‘descriptions: a patient-led description of ME, composed from the words of people with ME’, a found poem by Alec Finlay

    Phoebe, May 20, 2022
    Replies:
    0
    Views:
    989
    Phoebe
    May 20, 2022
  11. Andy

    Webinar: Challenging Disbelief and Disregard in relation to Medicine, Chronic Illness and Disability, 24th May 2022

    Andy, May 10, 2022
    Replies:
    1
    Views:
    785
    Arnie Pye
    May 10, 2022
  12. Wyva

    Help needed: Send messages to Hungarian pwME for my ME Awareness Day project

    Wyva, Apr 27, 2022 ... 2
    Replies:
    23
    Views:
    1,304
    Sarah
    May 8, 2022
  13. Andy

    [National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS

    Andy, Apr 15, 2022
    Replies:
    3
    Views:
    1,031
    Samuel
    Apr 20, 2022
  14. FMMM1

    Lobbying European Community for funding for ME/CFS Research

    FMMM1, Jan 4, 2019
    Replies:
    8
    Views:
    1,484
    FMMM1
    Mar 31, 2022
  15. Amw66

    MEAction Scotland - Stakeholder review of NICE 2021 ME/CFS Guideline to prepare for Scottish implementation - deadline 1 March 2022

    Amw66, Feb 23, 2022
    Replies:
    1
    Views:
    611
    Amw66
    Mar 7, 2022
  16. PeterW

    A Picture of_ME: media images of ME

    PeterW, Feb 16, 2022
    Replies:
    7
    Views:
    859
    Trish
    Feb 19, 2022
  17. Jaybee00

    Expert source list for journalists on Long COVID. Compiled by Fiona Lowenstein and Betsy Ladyzhets

    Jaybee00, Nov 5, 2021
    Replies:
    1
    Views:
    747
    Jaybee00
    Jan 17, 2022
  18. Cinders66

    Lancet photo competition for “original photographs that bring a fresh focus to a health story” -potential opportunity for awareness?

    Cinders66, Oct 22, 2019
    Replies:
    4
    Views:
    1,399
    Sasha
    Jan 5, 2022
  19. Esther12

    [Time for commenting has passed]Birmingham UK CCG DRAFT Policy for the treatment of Chronic Fatigue Syndrome (CFS) / Myalgic Encephalomyelitis (ME)

    Esther12, Jul 30, 2018
    Replies:
    3
    Views:
    1,415
    Sly Saint
    Dec 17, 2021
  20. Sly Saint

    ME/CFS sites promoting the Lightning Process

    Sly Saint, Jul 25, 2018
    Replies:
    2
    Views:
    1,815
    Sly Saint
    Dec 17, 2021
Showing threads 41 to 60 of 296

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