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Advocacy Projects and Campaigns

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  1. Hutan
    Sticky

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Hutan, Sep 30, 2022 ... 2 3 4
    Replies:
    73
    Views:
    8,643
    Art Vandelay
    Feb 16, 2024
  2. Andy
    Sticky

    International: Science for ME social media posts

    Andy, May 1, 2022 ... 8 9 10
    Replies:
    197
    Views:
    11,711
    Andy
    Apr 15, 2024 at 12:53 PM
  3. ahimsa

    USA: From Solve ME - Educate your Members of Congress about a "HOME" for IACCIs at NIH

    ahimsa, Apr 9, 2024
    Replies:
    4
    Views:
    230
    ahimsa
    Apr 10, 2024
  4. ahimsa

    International: March 15 is Long Covid Awareness Day - news coverage, social media posts, protests

    ahimsa, Mar 16, 2024
    Replies:
    18
    Views:
    692
    ahimsa
    Mar 23, 2024
  5. Hutan

    Making a 'Charter for Ethical ME/CFS Research'

    Hutan, Mar 10, 2024 ... 5 6 7
    Replies:
    128
    Views:
    3,144
    bobbler
    Mar 13, 2024
  6. Robert 1973

    Tom Kindlon nominated for an honorary degree at Trinity College Dublin

    Robert 1973, Feb 28, 2024
    Replies:
    14
    Views:
    12,323
    Tom Kindlon
    Apr 2, 2024
  7. yannlk

    Improving Google’s Abysmal “CFS” pop-up

    yannlk, Feb 3, 2024
    Replies:
    7
    Views:
    553
    CRG
    Feb 4, 2024
  8. Dolphin

    2024: USA NIH NINDS ME/CFS Research Roadmap - input on research priorities sought by 11 March 2024

    Dolphin, Feb 1, 2024 ... 2 3
    Replies:
    57
    Views:
    3,392
    Hutan
    Mar 22, 2024
  9. jonathan_h

    ALS Untangled: an organisation worth emulating?

    jonathan_h, Jan 26, 2024
    Replies:
    6
    Views:
    604
    Ravn
    Jan 28, 2024
  10. EndME

    Chronically Ignored - Investigative Documentary

    EndME, Jan 24, 2024
    Replies:
    2
    Views:
    569
    Dolphin
    Jan 28, 2024
  11. Dolphin

    (UK) Living with M.E. A Photographic Study by Jeremy Jeffs

    Dolphin, Nov 24, 2023
    Replies:
    5
    Views:
    894
    JohnTheJack
    Feb 27, 2024
  12. rvallee

    Crowdfunded awareness campaigns including billboards

    rvallee, Oct 19, 2023 ... 2 3
    Replies:
    45
    Views:
    2,739
    Ash
    Jan 1, 2024
  13. mango

    Dysautonomia Awareness Month October 2023

    mango, Oct 2, 2023
    Replies:
    4
    Views:
    835
    mango
    Oct 28, 2023
  14. Andy

    US: Infection-Associated Chronic Conditions Patient Advocacy Coalition (IACCPAC) national webinar, October 24, 2023 at 12pm ET / 9am PT

    Andy, Aug 27, 2023
    Replies:
    2
    Views:
    897
    duncan
    Aug 27, 2023
  15. Adam pwme

    New Video: Very Severe ME

    Adam pwme, Aug 7, 2023
    Replies:
    3
    Views:
    1,114
    Adam pwme
    Aug 7, 2023
  16. Andy

    Living With ME - Documentary by Thomas McCann

    Andy, Jun 25, 2023
    Replies:
    8
    Views:
    1,260
    Sean
    Jun 27, 2023
  17. Andy

    UK: ME Association: Count ME In [survey]

    Andy, May 22, 2023 ... 2
    Replies:
    20
    Views:
    5,183
    MEMarge
    Jul 31, 2023
  18. Sly Saint

    ME/CFS Medical Education Campaign UK - UK website and blog by Katie Johnstone

    Sly Saint, May 8, 2023 ... 2 3
    Replies:
    48
    Views:
    5,227
    Trish
    Feb 19, 2024
  19. ahimsa

    UK: Campaign called #MPDoYourJobForME

    ahimsa, Mar 22, 2023
    Replies:
    0
    Views:
    958
    ahimsa
    Mar 22, 2023
  20. TiredSam

    EU protests: request for pictures

    TiredSam, Feb 28, 2023
    Replies:
    2
    Views:
    1,581
    Dolphin
    Mar 5, 2023
  21. Andy

    ME Awareness Day / Week / Month, May 2023

    Andy, Feb 5, 2023 ... 2
    Replies:
    36
    Views:
    4,926
    Laurie P
    Jun 2, 2023
  22. wabi-sabi

    2023 Washington Post article: 'For Long Covid fatigue, a strategy called 'pacing' helps, but at a cost

    wabi-sabi, Jan 18, 2023
    Replies:
    2
    Views:
    1,578
    ahimsa
    Jan 19, 2023
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