What treatment trials for ME/CFS are currently ongoing?

Perrier said:
This is very interesting. But from the date the study seems over. Where would the results be found?
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The trial on fecal transplantation will start up in March next year, and they are still open for inclusion. The trial is called The Comeback Study and it has its own Facebookpage. Currently everything is in Norwegian, but I am sure they can write updates in English as well if requested.
 
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I just created a new thread listing ongoing studies. It's the first draft and I'd like to get your feedbacks to have the most uptodate list.
So do not hesitate to signal any ongoing study not yet listed.
Signal any error (spelling, broken link...)

There are several studies that could be listed in several topics, I choosed one more or less arbitrarily, please suggest any other classification you think is better.
There are several ongoing studies which were mentionned on S4ME, but for which I couldn't find official information (eg. LDN (Olli Polo + Younger's pilot), B vitamins (Rekeland); Immunadsorption (Scheibenbogen)

Thanks

Edit: I forgot the link!
https://www.s4me.info/index.php?threads/ongoing-me-cfs-studies.1241/
 
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Cheshire said:
There are several ongoing studies which were mentionned on S4ME, but for which I couldn't fink official information (eg. LDN (Olli Polo + Younger's pilot), B vitamins (Rekeland); Immunadsorption (Scheibenbogen)
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Here's an official link to the Immunadsorption study (though not a very helpful one - it just gives one sentence about it:

https://immunologie.charite.de/forschung/ag_scheibenbogen/schwerpunkte/#c30209007

Current clinical studies on CFS
  • Immunoadsorption in patients with autoantibodies to ß adrenergic receptors, supported by the company Fresenius Medical Care
  • HyQvia in patients with immunoglobulin deficiency, frequent infections and CFS, supported by the company Baxalta
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Note the second study there, also.

Some speculation on Phoenix Rising that the Rekeland study was one of B cells, not B vitamins - I can't find any official info.
 
My information from the team was the immunadsorption study is finished, but the results are not published yet, it seems.

HyQvia (immunoglobulins) is on-going.
 
From their December 20 press release:

Hemispherx recently reported that discussions are underway with the U.S. FDA on the next steps regarding a New Drug Application (NDA) for Ampligen® in ME/CFS, which afflicts more than one million people in this country, according to the Centers for Disease Control (CDC). Ampligen® is the only drug to have completed a Phase 3 clinical trial in the U.S. in ME/CFS.

https://finance.yahoo.com/news/hemispherx-successfully-completes-commercial-scale-140024889.html
 
sjJohnny said:
From their December 20 press release:

Hemispherx recently reported that discussions are underway with the U.S. FDA on the next steps regarding a New Drug Application (NDA) for Ampligen® in ME/CFS, which afflicts more than one million people in this country, according to the Centers for Disease Control (CDC). Ampligen® is the only drug to have completed a Phase 3 clinical trial in the U.S. in ME/CFS.

https://finance.yahoo.com/news/hemispherx-successfully-completes-commercial-scale-140024889.html
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Could someone please direct me to an up to date summary of ampligen? (=Rintatolimod)
I did google and find it on MEpedia but it looks like it was last updated in 2016?
 
I saw an interview with Dr Klimas ( easy to find) and she states that in dec 2017 she is doing a human trial. She is using gulf war patients and she says they present much like ME patients.she has cash because it’s gulf war illness. I tried to learn what drugs she is using and could not find out from the internet after typing in her name and her recent studies. She said in the interview that in her mouse models she was able to “ reboot the immune system”

Please post if you have info
Thanks
 
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