Discussion in 'BioMedical ME/CFS Research' started by Sasha, Nov 24, 2017.
We need more than B vitamins and LDN!!!!
Isn't that one finished, and wasn't the success negative? Or is there a second trial?
Chronic - all of the above - Syndrome.
You nailed it.
The trial on fecal transplantation will start up in March next year, and they are still open for inclusion. The trial is called The Comeback Study and it has its own Facebookpage. Currently everything is in Norwegian, but I am sure they can write updates in English as well if requested.
I just created a new thread listing ongoing studies. It's the first draft and I'd like to get your feedbacks to have the most uptodate list.
So do not hesitate to signal any ongoing study not yet listed.
Signal any error (spelling, broken link...)
There are several studies that could be listed in several topics, I choosed one more or less arbitrarily, please suggest any other classification you think is better.
There are several ongoing studies which were mentionned on S4ME, but for which I couldn't find official information (eg. LDN (Olli Polo + Younger's pilot), B vitamins (Rekeland); Immunadsorption (Scheibenbogen)
Edit: I forgot the link!
That's a great resource, @Cheshire! Far more going on than I thought.
Would it be helpful to indicate in the study titles which are treatment trials?
Added (in red to avoid confusion with the title, I tried to choose a not too agressive red)
Here's an official link to the Immunadsorption study (though not a very helpful one - it just gives one sentence about it:
Note the second study there, also.
Some speculation on Phoenix Rising that the Rekeland study was one of B cells, not B vitamins - I can't find any official info.
Hi @Cheshire, great list, thank you so much!
The immunadsorption and HyQvia trials are treatment trials, aren't they?
My information from the team was the immunadsorption study is finished, but the results are not published yet, it seems.
HyQvia (immunoglobulins) is on-going.
They're both medical interventions so I think they must be.
Here's some info on HyQvia (which I'd never heard of): http://www.hyqvia.com/
I participate in that study (but cannot say more). Maybe results can be published some time in 2018. I am myself very curious about the results.
From their December 20 press release:
Hemispherx recently reported that discussions are underway with the U.S. FDA on the next steps regarding a New Drug Application (NDA) for Ampligen® in ME/CFS, which afflicts more than one million people in this country, according to the Centers for Disease Control (CDC). Ampligen® is the only drug to have completed a Phase 3 clinical trial in the U.S. in ME/CFS.
Could someone please direct me to an up to date summary of ampligen? (=Rintatolimod)
I did google and find it on MEpedia but it looks like it was last updated in 2016?
I saw an interview with Dr Klimas ( easy to find) and she states that in dec 2017 she is doing a human trial. She is using gulf war patients and she says they present much like ME patients.she has cash because it’s gulf war illness. I tried to learn what drugs she is using and could not find out from the internet after typing in her name and her recent studies. She said in the interview that in her mouse models she was able to “ reboot the immune system”
Please post if you have info
Maybe not what you want, but:
Separate names with a comma.