Rossy191276
Established Member (Voting Rights)
I put this post here as I couldn't see a section for Primary Mitochondrial Disease in Missed/Alternative Diagnosis section...
Given the advice that if 3 or more systems are involved that it could possibly be a genetic/primary mitochondrial disease it would seem that anyone that meets ICC/CCC criteria should try to rule out primary mitochondrial disease.
But it seems from Ron Davis's and Naviaux's testing they don't believe there is anything wrong with the mitochondria themselves rather the mitochondrial disfunction is caused by something else
I am wondering peoples opinions on what differentiates ME from known genetic mitochondrial diseases in terms of symptoms...
Given that even though exercise intolerance can be part of mitochondrial disease the fact that GET seems to be prescribed with primary Mitochondrial disease and there is no patient outcry from what I can tell perhaps extreme crashing from exertion in ME is one differentiating point that doesn't occur in genetic MD.
Would you agree or are there others you can think of that are differentiating symptoms/experiences...
Given the advice that if 3 or more systems are involved that it could possibly be a genetic/primary mitochondrial disease it would seem that anyone that meets ICC/CCC criteria should try to rule out primary mitochondrial disease.
But it seems from Ron Davis's and Naviaux's testing they don't believe there is anything wrong with the mitochondria themselves rather the mitochondrial disfunction is caused by something else
I am wondering peoples opinions on what differentiates ME from known genetic mitochondrial diseases in terms of symptoms...
Given that even though exercise intolerance can be part of mitochondrial disease the fact that GET seems to be prescribed with primary Mitochondrial disease and there is no patient outcry from what I can tell perhaps extreme crashing from exertion in ME is one differentiating point that doesn't occur in genetic MD.
Would you agree or are there others you can think of that are differentiating symptoms/experiences...