Well-known, famous people with ME/CFS (public thread)

If its an infection, it might be detected and specified. Waking up sick can be PEM. People can refer to PEM as being sick. A lot of these news reports talk about not pushing through an unspecified, unexplained illness. As a technique to maximise and expedite convalescence.

If this man is labelled with ME/CFS and/or LC, then it devalues him. Anyone who looks can find out all that is said about these conditions by all sides of the divide. Sports medicine can find it.

What was identified is an Achilles tendinitis - sounds like an inflamed tendon - sounds like the tendon that can even be snapped by a nasty antibiotic with very nasty "side-effect". Antibiotics can be given stupidly without identifying an infection eg to get children up and back to school.

Dolphin said:
He had a viral onset (around a year ago) and deals with fatigue. So a post viral fatigue syndrome.
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At least.
 
I think If sports medicine wants to find out - is this virus in his blood - then sports medicine can get the test done.

If he does not say he has ME/CFS, Covid or Long Covid, maybe he would disagree. As far as I can see, no-one has asked him. Its sounding like the matter of "coming out". Which doesn't mean its ME/CFS.

I think people need some control over the labels attached to them. I don't like being labelled with labels I don't agree to. So some say I am in denial. There may be exceptions to my copyright.
 
Former Never Mind The Buzzcocks host Mark Lamarr has been banned from driving despite claiming it would cause him “exceptional hardship”.
[..]
The former TV presenter said that he suffers with Chronic Fatigue Syndrome and that using a bus stop would be “out of the question” on a bad day, and that walking to the train station can be “quite exhausting” for him.

He said that on “bad days” he will have to “lay down for a day or two” and will be unable to walk for weeks.

Lamarr also told the court that he is “effectively retired” and is now “dealing records”, and that he uses his car to “find stock”.
www.corklive.ie

Mark Lamarr banned from driving despite claiming exceptional hardship

Former Never Mind The Buzzcocks host Mark Lamarr has been banned from driving despite claiming it would cause him “exceptional hardship”. The comedian pleaded guilty to driving a 2019 Volvo XC60 at 46mph in a 40mph zone in Twickenham, south-west London, at around 6.30am in June last year...
www.corklive.ie www.corklive.ie
 
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Dolphin said:
Former Never Mind The Buzzcocks host Mark Lamarr has been banned from driving despite claiming it would cause him “exceptional hardship”.
[..]
The former TV presenter said that he suffers with Chronic Fatigue Syndrome and that using a bus stop would be “out of the question” on a bad day, and that walking to the train station can be “quite exhausting” for him.

He said that on “bad days” he will have to “lay down for a day or two” and will be unable to walk for weeks.

Lamarr also told the court that he is “effectively retired” and is now “dealing records”, and that he uses his car to “find stock”.
www.corklive.ie

Mark Lamarr banned from driving despite claiming exceptional hardship

Former Never Mind The Buzzcocks host Mark Lamarr has been banned from driving despite claiming it would cause him “exceptional hardship”. The comedian pleaded guilty to driving a 2019 Volvo XC60 at 46mph in a 40mph zone in Twickenham, south-west London, at around 6.30am in June last year...
www.corklive.ie www.corklive.ie
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Many fond memories watching of NMtB during his run, so very sad that he's a fellow sufferer, though also very glad that it apparently has not taken away his ability to enjoy music.

Important note from the full article: he hasn't permanently been banned from driving due to his ME/CFS - he was handed a 6 month ban for speeding (6mph over the limit... which maybe does seem a bit harsh, maybe there's more to the story?).
 
DHagen said:
he hasn't permanently been banned from driving due to his ME/CFS - he was handed a 6 month ban for speeding (6mph over the limit... which maybe does seem a bit harsh, maybe there's more to the story?).
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Apparently he already had points on his licence from a couple of previous speeding convictions—I don't think you'd normally get a ban for that level of infringement if it was your first offence.
 
DHagen said:
Many fond memories watching of NMtB during his run, so very sad that he's a fellow sufferer, though also very glad that it apparently has not taken away his ability to enjoy music.

Important note from the full article: he hasn't permanently been banned from driving due to his ME/CFS - he was handed a 6 month ban for speeding (6mph over the limit... which maybe does seem a bit harsh, maybe there's more to the story?).
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He’s always been a speed demon. Allergic to speed limits.
 
www.oe24.at

Seltene Krankheit: Ski-Star muss sofort aufhören

Der deutsche Skirennfahrer Andreas Sander zieht einen Schlussstrich. Nach zweijähriger Kampfpause wegen einer schweren Zellerkrankung gab der 36-jährige Speed-Spezialist nun sein Karriereende bekannt.
www.oe24.at www.oe24.at

German ski racer Andreas Sander is calling it quits. After a two-year hiatus due to a serious cell disease, the 36-year-old speed specialist has now announced his retirement.
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"Back in 2024, doctors diagnosed Sander with mitochondrial dysfunction. This serious disorder of the cell's powerhouses led to extreme exhaustion and concentration problems, resulting in a strict ban on sport"

Was he dx with ME/CFS? What is the translation for 'cell's powerhouse disorder"?
 
Actor Arnaud Denis, in palliative care: "My last thought will go to the victim of anti-hernia implants."

"From his hospital room in Belgium, where he has been receiving palliative care since March 18, actor Arnaud Denis, who has had a hernia implant since 2023, agreed to answer questions exclusively from the EBRA group, of which this newspaper is a part. The 42-year-old director is about to receive medical approval to undergo euthanasia."

"Implanted in 2023 following a right inguinal hernia, Arnaud Denis had to have his polypropylene prosthesis removed a few months later in the United States. But the damage was done. He was diagnosed with severe myalgic encephalomyelitis (a neurological and immune disease) and ASIA syndrome. The latter is an inflammatory syndrome characterized by the onset of various physical and/or neurological symptoms (intense fatigue, cognitive impairment, chronic pain, etc.) following exposure to an adjuvant. Arnaud Denis was the first to raise the alarm about this "health scandal " Through the victims' collective he founded, he collected between 600 and 700 testimonies. It is to them that his final thoughts will go."
 
This is sad for him. He says that all his bodily systems are dysfunctional, circulatory, urinary, digestive system, and muscles, and says he no longer has any quality of life, and that he was to go(die).

 
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