Well-known, famous people with ME/CFS (public thread)

[bicentennial]

If its an infection, it might be detected and specified. Waking up sick can be PEM. People can refer to PEM as being sick. A lot of these news reports talk about not pushing through an unspecified, unexplained illness. As a technique to maximise and expedite convalescence.

If this man is labelled with ME/CFS and/or LC, then it devalues him. Anyone who looks can find out all that is said about these conditions by all sides of the divide. Sports medicine can find it.

What was identified is an Achilles tendinitis - sounds like an inflamed tendon - sounds like the tendon that can even be snapped by a nasty antibiotic with very nasty "side-effect". Antibiotics can be given stupidly without identifying an infection eg to get children up and back to school.

He had a viral onset (around a year ago) and deals with fatigue. So a post viral fatigue syndrome.

At least.

 

[Mij]

@Dolphin

Ok, but some research shows that the virus can persist for over a year. I'm pretty sure his medical team don't know much about PVFS anyways.

"The COVID-19 virus can persist in the blood and tissue of patients for more than a year after the acute phase of the illness has ended, according to new research from UC San Francisco that offers potential clues to why some people develop long COVID"

 

[bicentennial]

I think If sports medicine wants to find out - is this virus in his blood - then sports medicine can get the test done.

If he does not say he has ME/CFS, Covid or Long Covid, maybe he would disagree. As far as I can see, no-one has asked him. Its sounding like the matter of "coming out". Which doesn't mean its ME/CFS.

I think people need some control over the labels attached to them. I don't like being labelled with labels I don't agree to. So some say I am in denial. There may be exceptions to my copyright.