USA: News from the Bateman Horne Center

New blog post on severe ME/CFS from Bateman Horne Center:

Finding Comfort When Bedbound: A Community Member Shares Her Advice
Bateman Horne said:
August is Severe ME/CFS Awareness Month, a time to recognize and honor the experiences of those living with the most disabling form of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

People with severe ME/CFS often spend most of their days in bed, facing profound limitations that affect every part of daily life.

As part of this awareness month, a community member generously offered to share her personal strategies for making her space more comfortable and manageable while living mostly bedbound. Her advice reflects creativity, trial and error, and a deep understanding of how even small changes can make daily life a little easier.
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Free online even from Bateman Horne Center:

Coffee with a Clinician: Navigating Clinical Uncertainty
Wednesday, October 8, 10 AM Mountain Time
Bateman Horne Center (BHC) said:
"Coffee" with a Clinician - A free BHC Community Event
Hosted by: Zeest Kahn, MD, Melanie Hoppers, MD and Jennifer Bell, F-CNP

Join us for the very first Coffee with a Clinician! We’ll explore Chapter 1 of the Clinical Care Guide, which outlines what ME/CFS, Long COVID, and other infection-associated chronic conditions have in common. This is practical information you can share with your medical provider to help them recognize post-exertional malaise, understand overlapping conditions, and begin offering supportive care.

About Coffee with a Clinician:

- Each month, a Bateman Horne Center clinician or expert will lead a conversation focused on a chapter or theme from the Clinical Care Guide.
- Every other month, the webinar host will answer the most frequently asked questions from the ME/CFS community.
- The series is free to attend, with an optional $5 donation — “buy us a coffee” — to help BHC put the Clinical Care Guide into more clinicians’ hands.
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Register here
(registration link shows time in your time zone)
 
Blog post from Bateman Horne Center, posted on Oct. 17.

Kim Moy writes about Bateman Horne Center’s first Coffee with a Clinician webinar - Navigating Clinical Uncertainty - and shares some key takeaways.

Guest Blog: October’s Coffee with a Clinician, Navigating Clinical Uncertainty
Bateman Horne Center said:
After attending a “Navigating Clinical Uncertainty” webinar presented by the Bateman Horne Center as part of their new “Coffee with a Clinician” monthly webinar series, I’d like to share highlights, actionable tips, and reflections with you. They’re especially relevant to family caregivers of loved ones with debilitating complex illnesses.

The webinar, aimed at patients, caregivers, and clinicians, discussed topics from Chapter 1 of Bateman Horne’s Clinical Care Guide for Managing ME/CFS, Long COVID, & IACCs:

- Challenges faced by both patients and clinicians dealing with illnesses that are complex and don’t neatly map to established protocols

- Embracing a collaborative care model in which the patient (and often family caregiver) and providers share knowledge and decision-making

- Taking a “trial and pivot” approach: trying an intervention, assessing, and adjusting when needed
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From Facebook:

Dr. Lucinda Bateman recently presented for the Institute for Neuro-Immune Medicine’s (INIM) Clinicians’ Meeting Research Series, part of the Dr. Kiran C. Patel College of Osteopathic Medicine at Nova Southeastern University.

In this presentation, Dr. Bateman outlines practical, evidence-based strategies for identifying and managing orthostatic intolerance (OI), a key feature in ME/CFS, Long COVID, and other infection-associated chronic conditions. She discusses simple in-clinic assessments such as the 10-minute lean test and symptom questionnaires, shares insights from published studies, and reviews treatments that can make a measurable difference in patients’ daily function.

Watch the full presentation here ➡️

Institute for Neuro-Immune Medicine
#OrthostaticIntolerance #POTS #MECFS #LongCOVID #ClinicalEducation #BHC #INIM #NovaSoutheasternUniversity
 
Coffee with a Clinician: Part 2 Navigating Clinical Uncertainty

Wednesday, November 12, 10:00 am MDT
5 PM in Great Britain & Ireland
Bateman Horne Center said:
The October Coffee with a Clinician conversation opened an important dialogue about the challenges patients, caregivers, and clinicians face when diagnosis and care pathways are not always clear.

In this follow-up session, we will continue the conversation with a panel of lived-experience individuals, caregivers, and medical providers who will share practical strategies for bridging the patient-provider communication gap.
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Advance registration required - Registration link
(registration link shows time in your time zone)

Coffee with a Clinician is free to attend, with an optional $5 donation to support BHC’s education and outreach programs.
 
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