USA: News from Patient-Led Research Collaborative

[ahimsa]

I wasn't sure where to put the news about this group's July 9 webinar. So I created a new thread for the Patient-Led Research Fund organization. Please move this post if it belongs elsewhere.

Website for Patient-Led Research Collaborative

Linktree for Patient-Led Research Collaborative

Webinar information, from a post on Mastodon:

Patient-Led Research Fund
Webinar 2025 | Aligning community needs with research priorities

Come see the results and latest progress from the 10 studies funded by the Patient-Led Research Fund — biomedical research projects selected by a panel of patient-researchers with both scientific expertise and lived experience of Long COVID and/or ME/CFS.

Wednesday, July 9

10:00 am - 1:30 pm PT
1:00 pm - 4:30 pm ET

Registration link for webinar

 

[ahimsa]

Coverage of the July 9 webinar from The Sick Times:

Live blog: Following the Patient-Led Research Fund summer 2025 webinar

 

[SNT Gatchaman]

July 9 Webinar (3 hour 20 min)

Research Items —

13:10 - Braeden Charlton, PhD - Skeletal Muscle Abnormalities in Long COVID
25:45 - Caroline Dalton, PhD - Fibrinaloid microclot quantification in plasma from people with Long COVID and ME/CFS
42:20 - Liisa Selin, MD, PhD - Altered T cell responses in Long COVID (PASC) and ME/CFS
57:25 - David Esteban, PhD - Alterations in tryptophan metabolism in the gut microbiome of people with ME/CFS and Long COVID
1:11:00 - Megan Fitzgerald, PhD - Nothing for us without us: aligning research funding with patient priorities
1:24:25 - Roshan Kumar, PhD - T cell dysregulation revealed by single-cell profiling of ME/CFS and Long COVID patients
1:38:35 - Per Sjögren, MD& Bo C Bertilson, MD - Surgery for foraminal stenosis in ME/CFS
1:55:20 - Wenzhong Xiao, PhD - Systems Biology Approaches to Uncovering Disease Mechanism and Drug Repurposing for Long COVID
2:16:55 - Alain Moreau, PhD - Epigenomics of Long COVID: Insights, Breakthroughs, and Emerging Hope.
2:31:50 - Janet Mullington, PhD - Characterizing non-restorative sleep in post-viral disease to advance intervention innovations
2:47:53 - Michael Peluso, MD - Monoclonal antibodies in Long COVID: what needs to happen next

 

[Jaybee00]

Very exicited to be heading to Keystone Symposium on #LongCovid in Santa Fe to represent @patientled !Aside from leading researchers, there will be good # of pharma (Pfizer, J&J), & handful NIH folks.Send me any questions / intel requests / asks & will read by Sunday!

Anyone on X who could tweet or DM Charlos to ask him to ask JNJ to fund the phase 2 Dara trial in Norway?

Thanks

@Dakota15

 

[Dolphin]

July 9 Webinar (3 hour 20 min)



Research Items —

13:10 - Braeden Charlton, PhD - Skeletal Muscle Abnormalities in Long COVID
25:45 - Caroline Dalton, PhD - Fibrinaloid microclot quantification in plasma from people with Long COVID and ME/CFS
42:20 - Liisa Selin, MD, PhD - Altered T cell responses in Long COVID (PASC) and ME/CFS
57:25 - David Esteban, PhD - Alterations in tryptophan metabolism in the gut microbiome of people with ME/CFS and Long COVID
1:11:00 - Megan Fitzgerald, PhD - Nothing for us without us: aligning research funding with patient priorities
1:24:25 - Roshan Kumar, PhD - T cell dysregulation revealed by single-cell profiling of ME/CFS and Long COVID patients
1:38:35 - Per Sjögren, MD& Bo C Bertilson, MD - Surgery for foraminal stenosis in ME/CFS
1:55:20 - Wenzhong Xiao, PhD - Systems Biology Approaches to Uncovering Disease Mechanism and Drug Repurposing for Long COVID
2:16:55 - Alain Moreau, PhD - Epigenomics of Long COVID: Insights, Breakthroughs, and Emerging Hope.
2:31:50 - Janet Mullington, PhD - Characterizing non-restorative sleep in post-viral disease to advance intervention innovations
2:47:53 - Michael Peluso, MD - Monoclonal antibodies in Long COVID: what needs to happen next

Read our latest Solve Science Spotlight summaries of presentations made at a recent Patient-Led Research Collaboration (PLRC) conference

PLRF Event Highlights Promising ME/CFS & Long Covid Biomedical Research Projects - Solve ME/CFS Initiative

Read our Solve Science Spotlight summary of the recent Patient-Led Research Fund virtual event in which researchers share their latest findings about the underlying biology of ME/CFS, Long Covid, and other IACCIs.

solvecfs.org