United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

[BurnA]

I agree it’s positive

But @Jonathan Edwards only said that it sounded positive
(with a lot of caveats )

The CMRC has already said that they are looking for an open platform, which would be open to all comers. So it’s not a fund grab by the board.But yes, the pie has to be big enough to produce decent slices.

Sorry I don't buy this.

If the CMRC want to be effective they should secure funding for good quality biomedical research.
It doesn't have to be a MEGA pie with everyone getting a slice, it can be anyone with the knowledge and ability to perform research of the level we need.

If the CMRC are serious they need to admit the failings of the past, there needs to be a complete clean sweep of the old guard. They need to form a clear entity which takes a position against poor quality research, and they need to ditch the SMC.

 

[adambeyoncelowe]

But @Jonathan Edwards only said that it sounded positive
(with a lot of caveats )

Sorry I don't buy this.

If the CMRC want to be effective they should secure funding for good quality biomedical research.
It doesn't have to be a MEGA pie with everyone getting a slice, it can be anyone with the knowledge and ability to perform research of the level we need.

If the CMRC are serious they need to admit the failings of the past, there needs to be a complete clean sweep of the old guard. They need to form a clear entity which takes a position against poor quality research, and they need to ditch the SMC.

Exactly.

 

[ladycatlover]

If the CMRC are serious they need to admit the failings of the past, there needs to be a complete clean sweep of the old guard. They need to form a clear entity which takes a position against poor quality research, and they need to ditch the SMC.

Or maybe they should just disband. Let those who are serious about proper biological research join another organisation that is patient friendly. Or set up one that is patient friendly and hopefully refuse any psychiatrists membership.

 

[Valentijn]

Or set up one that is patient friendly and hopefully refuse any psychiatrists membership.

I'd welcome sane psychiatrists. Unfortunately ME seems to attract the other sort.

 

[MeSci]

I'd welcome sane psychiatrists. Unfortunately ME seems to attract the other sort.

Apart from @Carolyn Wilshire?

 

[Valentijn]

Apart from @Carolyn Wilshire?

We end up with some very good ones too Which is why I wouldn't have a blanket exclusion.

 

[Alvin]

We end up with some very good ones too Which is why I wouldn't have a blanket exclusion.

Can we clone her enough times to fill a critical mass of psychiatrist positions worldwide?

 

[Sasha]

Apart from @Carolyn Wilshire?

She's not a psychiatrist but a research psychologist, AFAIK - is that right, @Carolyn Wilshire?

 

[TiredSam]

Can we clone her enough times to fill a critical mass of psychiatrist positions worldwide?

We would need a safeguard against her always agreeing with herself and replicating her own studies. What if she was ever wrong about something?

 

[Cheshire]

I don't know if Ponting will manage to change things radically, but he seems willing to engage with patients:

 

[Sasha]

I don't have the hang of Twitter but found that if I clicked on the time-stamped (currently says 17h but that may change) at the top right of Emma Joy's post above, you can see the whole conversation.

I continue to be impressed by Chris Ponting.

 

[Barry]

Wow, this snippet looks encouraging, especially Mark Vink's end comment ...

 

[adambeyoncelowe]

I'm liking Vink and Ponting more and more.

 

[Kalliope]

 

[Andy]

People on Twitter (sorry, I'm not) could encourage him to do a Q&A with us in the same way that we did with Montoya. We gather the questions first and then do a video Q&A with him.

 

[Jan]

People on Twitter (sorry, I'm not) could encourage him to do a Q&A with us in the same way that we did with Montoya. We gather the questions first and then do a video Q&A with him.

 

[Alvin]

We would need a safeguard against her always agreeing with herself and replicating her own studies. What if she was ever wrong about something?

We can deal with that problem later, lets get some real science done first.

 

[Andy]

Awesome, thanks Jan

 

[Carolyn Wilshire]

She's not a psychiatrist but a research psychologist, AFAIK - is that right, @Carolyn Wilshire?

Yes, I'm a research psychologist, with a background In Experimental Psychology.

I think its completely fair to say that Psychology, as a discipline, has played a huge rule in the awful situation you now find yourselves in. The culture in some areas of Psychology is not as critical as it could be. So I don't mind people criticising the discipline at all.

I'm not a psychiatrist, but consider that discipline to share many of the same problems, and then some - to do with the lack of thorough training in scientific methodology in that profession.

 

[Barry]

I'd welcome sane psychiatrists. Unfortunately ME seems to attract the other sort.

Which of course introduces the notion of insane psychiatrists, which sounds like something of a joke ... oh, yes, ha haa ... that's exactly what those particular ones are, as in sick joke.