1. Guest, the 'News in Brief' for the week beginning 19th September 2022 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

United Kingdom: Invest in ME news

Discussion in 'News from organisations' started by Andy, Feb 1, 2020.

  1. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
  2. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
  3. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
  4. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
  5. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
  6. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
    Hutan likes this.
  7. Trish

    Trish Moderator Staff Member

    Messages:
    42,163
    Location:
    UK
  8. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    7,827
    Location:
    UK
    Invest in ME Research has won a £1,000 Movement for Good award thanks to nominations from the public.

    https://www.investinme.org/IIMER-Newslet-21701eccles.shtml

    Invest in ME Research has again secured places in the Royal Parks Half Marathon which will take place in October 2021.

    This will be another opportunity for raising awareness of ME and of the charity's efforts to fund a strategy of funding high-quality biomedical research and the development of a UK/European Centre of Excellence for ME.
    Our runners
    We are very grateful to any of our supporters who decide to run for the charity.

    Please help publicise these if you can - in the media, on social media.

    We welcome every effort made to support our Team IIMER.

    Your efforts will help ensure all funds will go to supporting, promoting or funding biomedical research into ME.

    https://www.investinme.org/IIMER-Newslet-21-0201RPHM.shtml
     
    Hutan, Dolphin, MEMarge and 1 other person like this.
  9. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    2,868
    Hutan, mango and Levant like this.
  10. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
  11. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK
    "The recent statement made by Secretary of State for Health Sajid Javid that he would set up a meeting to "drive high-quality applications for research into ME/CFS and support the research community to build capacity and capability in this field" – following his disclosure of a relative with ME – has led some to believe that a new dawn is breaking for ME [1].

    It is, of course, completely understandable that some may feel that we suddenly have a dramatic change for ME. As much as anyone IiMER wish to see huge investment in a sound strategy of biomedical research into ME, and adequate and relevant services from educated and informed clinicians - things we have consistently campaigned for since we were formed.

    But words are cheap.
    It is all well to have another new initiative come along every few years, claiming to herald a new approach, yet ending up nowhere and wasting more lives of people with ME.

    As with the NICE guidelines of 2021 the reality is that all of this could have been done properly a decade or more ago – and was not.
    So now we perhaps have a little more publicity – thanks mainly to the number of people falling to long covid and the urgency (and funding) given to the pandemic, and a health secretary who has a relative with ME.
    But is this a sea change?
    Will things change – and quickly?"

    https://www.investinme.org/iimer-newslet-220601-javid.shtml
     
    shak8, Lou B Lou, MEMarge and 3 others like this.
  12. Andy

    Andy Committee Member

    Messages:
    17,469
    Location:
    Hampshire, UK

Share This Page