Jonathan Edwards
Senior Member (Voting Rights)
I'm hoping they will have a neurological approach instead of a biopsychosocial one and experience with similar conditions will help them interpret my needs.
I am getting a bit confused between your own plans and discussion of policy.
The hope is that practices will change with the new NICE guideline. The guideline suggests care should occur in the sort of environment we call a fatigue clinic rather than a rehab unit. Although at the round table it was agreed that rehab professionals should be mentioned in the guideline it was with lack of enthusiasm.
The neurological approach to ME has in general been either that there is nothing wrong, because there is nothing to find on neurological examination, or that the problem is 'functional' implying psychosomatic. The few enlightened ME practitioners have tended not to be neurologists.
The neurorehab view is much the same plus the insistence that exercise therapy is what is needed. The chief spokesperson for the rehab sector has Mae it clear that she does not think the new guideline is correct and that GET and CBT should continue.
Moreover, even the physios who have an understanding of ME claim that patients after head injury get better with exercise. So GET is still absolutely on the menu for head injury.