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UK - NHS England online tool and clinics for long Covid.

Discussion in 'Long Covid news' started by Kalliope, Jul 5, 2020.

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Page 9 of 15
  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Sly Saint, Aug 17, 2020
    #161
    MEMarge, Hutan, It's M.E. Linda and 1 other person like this.
  2. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

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    It's M.E. Linda, Aug 17, 2020
    #162
    MEMarge and NelliePledge like this.
  3. rvallee

    rvallee Senior Member (Voting Rights)

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    Last edited: Sep 12, 2020
    rvallee, Sep 12, 2020
    #163
    MEMarge, Invisible Woman, ladycatlover and 9 others like this.
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    rvallee, Oct 7, 2020
    #164
    MEMarge, ladycatlover, chrisb and 5 others like this.
  5. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dx Revision Watch, Oct 7, 2020
    #165
    MEMarge, ladycatlover, chrisb and 5 others like this.
  6. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dx Revision Watch, Oct 7, 2020
    #166
    Arnie Pye, MEMarge, Joh and 14 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

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    Liaison psychiatry teams all round the country no doubt offering their services....... i hope there’s going to be some some actual testing and medical treatment. Definitely will be interesting to see how this turns out in practice.
     
    NelliePledge, Oct 7, 2020
    #167
    Arnie Pye, MEMarge, MeSci and 7 others like this.
  8. chrisb

    chrisb Senior Member (Voting Rights)

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    "Better" than what?
     
    chrisb, Oct 7, 2020
    #168
    Arnie Pye, MEMarge, obeat and 5 others like this.
  9. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Better than a poke in the eye with a sharp stick?

    Maybe not.

    As NelliePledge says - it's going to be very interesting to see (whether) and how these projected clinics pan out.
     
    Dx Revision Watch, Oct 7, 2020
    #169
    Arnie Pye, MEMarge, Invisible Woman and 9 others like this.
  10. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dx Revision Watch, Oct 7, 2020
    #170
    Invisible Woman, ladycatlover, alktipping and 1 other person like this.
  11. Trish

    Trish Moderator Staff Member

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    https://www.bbc.co.uk/news/health-54449145

    BBC News

     
    Trish, Oct 7, 2020
    #171
    MEMarge, Invisible Woman, ladycatlover and 4 others like this.
  12. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    13,512
    Location:
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    It seems that Dr Greenhalgh is not aware that she will be cynically manipulated by government only too happy to have cheerleaders in nice short outfits to match their cutting funding equally short while making it look longer. What is the point in funding a service that has node what it is supposed to recommend?
     
    Jonathan Edwards, Oct 7, 2020
    #172
    Arnie Pye, obeat, Invisible Woman and 10 others like this.
  13. Shinygleamy

    Shinygleamy Senior Member (Voting Rights)

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    I suspect it's going to be really lackluster because they won't be investigating covid people medically/scientifically and trying out treatments as they should. It will all be self management, rest, feelings, etc but nothing solid, because how can it be in the current wafty NHS system?
     
    Shinygleamy, Oct 7, 2020
    #173
    Arnie Pye, obeat, anniekim and 10 others like this.
  14. Esther12

    Esther12 Senior Member (Voting Rights)

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    I get the impression that she's someone who is politically astute. I don't always agree with what she's astutely trying to achieve though.
     
    Esther12, Oct 7, 2020
    #174
    Arnie Pye, obeat, Invisible Woman and 3 others like this.
  15. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Oregon, USA
    I skimmed the NHS announcement and saw that they mention CPET.
    Is this an opportunity for someone to suggest doing 2-day CPET on COVID patients and then comparing those results to past studies with ME patients?

    Or is that a bad idea for some reason?
     
    Last edited: Oct 7, 2020
    ahimsa, Oct 7, 2020
    #175
    MEMarge, ladycatlover, MSEsperanza and 3 others like this.
  16. Trish

    Trish Moderator Staff Member

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    I think they would have to restrict that to a properly registered and ethically approved study, because, if the long Covid patient has PEM, as some apparently do, they would need to be warned that CPET and especially 2 day CPET are likely to trigger PEM, and hold a risk of long term worsening, as does any instance of pushing beyond the energy envelope.

    It sounds like they are using the single CPET to assess lung and heart function, which would presumably be a valid thing to do in patients where there may be lung and/or heart damage. But I'm no expert.

    I agree it would be very interesting if they did a study of 2 day CPET in long Covid patients, with suitable warnings.
     
    Trish, Oct 8, 2020
    #176
    MEMarge, MeSci, ahimsa and 6 others like this.
  17. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dx Revision Watch, Oct 8, 2020
    #177
    MEMarge, Invisible Woman, Shinygleamy and 2 others like this.
  18. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    "what evidence base will they be using?"

    TG's answer:

    "Ours I hope!"

    Does this hope imply TG thinks her team's research had gathered sufficient evidence that could form an adequate evidence base, so that no additional source of evidence nor research is needed for the guideline?

    (Genuine question from a non-native speaker.)

    Edited for clarity.
     
    Last edited: Oct 8, 2020
    MSEsperanza, Oct 8, 2020
    #178
    Arnie Pye, MEMarge, Simbindi and 4 others like this.
  19. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Kalliope, Oct 8, 2020
    #179
    Amw66, rvallee, StefanE and 7 others like this.
  20. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dx Revision Watch, Oct 8, 2020
    #180
    MEMarge, rvallee, MSEsperanza and 1 other person like this.
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