Andy
Retired committee member
A new blog/email newsletter.
What We Achieved in 2022
"As we resume work for the year ahead, we want to take the opportunity to look back on 2022 and see all we have achieved so far in this study.
Summary:
If you haven’t yet signed up as a participant, please click Take Part
Please note that you do not need to receive an invitation to take part. Having previously registered for updates on the study’s progress does not register you as a participant."
More at https://www.decodeme.org.uk/what-we-achieved-in-2022/
What We Achieved in 2022
"As we resume work for the year ahead, we want to take the opportunity to look back on 2022 and see all we have achieved so far in this study.
Summary:
- We opened phase 1 to a few hundred paper participants in January. Their feedback led to us rewriting and improving the study questionnaire.
- We fully launched the study on 12 September to all participants and opened the online portal for registrations. In the first week, over 10,000 people signed up and over 7,000 of those had already completed the DecodeME questionnaire.
- At the time of writing, we have over 23,000 people registered as a user on the DecodeME participant portal. Of those, over 17,000 participants have completed the questionnaire, and nearly 9,000 people have already been sent a spit kit.
- The DecodeME study protocol was published in BMC Neurology in July making the study’s methods and design transparent and available to researchers all around the world.
- We held various webinars throughout the year and a list of these and their recording and transcripts can be found on our website.
If you haven’t yet signed up as a participant, please click Take Part
Please note that you do not need to receive an invitation to take part. Having previously registered for updates on the study’s progress does not register you as a participant."
More at https://www.decodeme.org.uk/what-we-achieved-in-2022/