Closed UK: DecodeME updates, was recruitment thread.

[Trish]

Here's the thread:

Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al

 

[hotblack]

Well this seems big. Thanks again to all involved. Including everyone here.

I’m going to take some time to rest and digest this all. Will catch up woth and join in all the discussions later. I’m sure there’s many long ones ahead of us!

 

[tornandfrayed]

Yes, thank you so much.

 

[Andy]

We need someone to find the preprint and make a thread.

Preprint thread

 

[Trish]

We now have several threads.
Please try to post on the relevant one. They are listed here:
2025 DecodeME News Alert thread

 

[Tia]

The way this study has been run has been exemplary from start to finish, the communication with participants has been amazing and so appreciated. Very grateful to the whole team for everything.

 

[V.R.T.]

A massive thank you to the whole DecodeME team! I'm very grateful to everyone who made tonight possible. Lets hope its the start of an interesting and fruitful journey!

 

[Chandelier]

I‘m so thankful to everyone involved who made this massive study a reality!

 

[StellariaGraminea]

X marks the spot where ME/CFS biology can be discovered - DecodeME

06 August 2025 Scientists, people with ME/CFS, and their charities came together to create DecodeME, the world’s biggest ME/CFS study – and its results are striking. 18,000 people with ME/CFS gave their DNA, enabling DecodeME to reveal eightgenetic signals for the illness. These signals indicate...

www.decodeme.org.uk

The DecodeME article seems really well done, appreciate how they use analogies to help explain the complex science.

 

[Trish]

This thread is closed. Please use the following threads. Some posts have been moved to the media thread.

The preprint thread here:
Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al

For media coverage go to this thread:
DecodeME in the media

Simon McGrath has written an article for the DecodeME website explaining the research.
Thread here:
DecodeME blog: X marks the spot where ME/CFS biology can be discovered