Trial By Error: And Another Prebuttal…

dave30th said:
It's impossible to know. Big "long-form" narrative stories, as this appears to be, can take a very long time. It might be a last editor hadn't seen it, it might be the reporter felt they needed to do some subsequent reporting, it might be that Brexit or other news have pre-occupied everyone, it's possible they were waiting for the HRA report. There's no one way and every publication has its own editorial processes and so on. So speculation is fun but not really productive or informative. We just don't know, and are unlikely to.
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Cheers @dave30th sorry for indulging in thinking out loud. :whistle:
 
I wonder how much of this 'investigative journalism' has been stirred up to try and distract @dave30th from the work he wanted to do around IAPT and MUS? How much of his valuable time has been lost to addressing all this cr*p?

As you can see from the below link, MUS are now being firmly construed as a mental health condition by NHS England, not symptoms of physical illness(es) of unknown aetiology:

https://www.england.nhs.uk/mental-health/adults/iapt/mus/wave-two-integrated-iapt-sites/

As previous posts have highlighted, 'CFS' and 'CFS/ME' have been used as examples of MUS in the IAPT guidance.

https://www.s4me.info/threads/the-i...ns-and-mus-full-implementation-guidance.6948/

The future here in the UK is not looking rosy, the recent parliamentary debate not withstanding. We urgently need @dave30th to help highlight the BPS agenda that is driving the IAPT MUS programme, and unpick the pseudoscience that is propping the whole edifice up.
 
Simbindi said:
I wonder how much of this 'investigative journalism' has been stirred up to try and distract @dave30th from the work he wanted to do around IAPT and MUS?
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I agree this is a critical need that I need to pay more attention to going forward, and yes, this current situation has distracted me from getting further along on that topic. I can't speculate about people's motivations--well, I can, but in this case I won't publicly.
 
Simbindi said:
I wonder how much of this 'investigative journalism' has been stirred up to try and distract @dave30th from the work he wanted to do around IAPT and MUS? How much of his valuable time has been lost to addressing all this cr*p?

As you can see from the below link, MUS are now being firmly construed as a mental health condition by NHS England, not symptoms of physical illness(es) of unknown aetiology:

https://www.england.nhs.uk/mental-health/adults/iapt/mus/wave-two-integrated-iapt-sites/

As previous posts have highlighted, 'CFS' and 'CFS/ME' have been used as examples of MUS in the IAPT guidance.

https://www.s4me.info/threads/the-i...ns-and-mus-full-implementation-guidance.6948/

The future here in the UK is not looking rosy, the recent parliamentary debate not withstanding. We urgently need @dave30th to help highlight the BPS agenda that is driving the IAPT MUS programme, and unpick the pseudoscience that is propping the whole edifice up.
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Whereas I don't disagree with your post I would add that we also need others to do the work too. Unfortunately I don't see too many people doing what David does in the UK. Without trying to speak for him (because I obviously cannot), he's done a marvellous job but I'm sure he has a life of his own that he wants to get back to so we need to have some 'grow your own' people with similar knowledge and tenacity here.

As a little side issue, I don't think it's at all surprising that (essentially) it took an Aussie and an American to get us this far re the PACE trial breakthroughs in recent years. We in the UK need to borrow some of this tenacity if we're to progress.
 
AR68 said:
As a little side issue, I don't think it's at all surprising that (essentially) it took an Aussie and an American to get us this far re the PACE trial breakthroughs in recent years. We in the UK need to borrow some of this tenacity if we're to progress.
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I agree, but having international objectivity adds a lot of impact to the arguments being made.

The MUS agenda seems to be prevalent and growing in at least a few other European countries. The UK NICE guidelines around CBT and GET have had a negative impact on ME sufferers across the globe, so what is happening in the UK around IAPT and MUS could well do the same if not recognised and challenged in a timely manner by the international ME community. Hence the need for international journalism to highlight the severity of this particular problem to a wide audience.

The impending expansion of IAPT is one of the reasons I suggested a new sub-forum to discuss issues around general disability studies, as many chronic and severely ill people, not just those with ME, are going to be affected by the MUS monster.

https://www.s4me.info/threads/sub-forum-on-general-disabilities-studies-and-advocacy.7996/

Having allies across a diversity of disability/illness communities would help both us and them. I think the ME community is ahead of many other illness communities in recognising what is happening (the gas-lighting and the impending MUS juggernaut ) because we have been being harmed by the dominant BPS model for so long.

See, for example:

https://www.s4me.info/threads/icd-11-fibromyalgia-mg30-01-chronic-widespread-pain.5088/
 
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Simbindi said:
I agree, but having international objectivity adds a lot of impact to the arguments being made.
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Yes but that's not my argument. I've nothing against outside intervention - it is absolutely needed - but it's absolutely needed because the people from outside the UK to whom I've referred have done things which we haven't.
 
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