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International: World Health Organization News (news relevant to ME/CFS, Long Covid and related conditions)

Discussion in 'News from organisations' started by Simon M, Aug 22, 2020.

  1. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Dr Tedros G has triggered a scattergun response via a social medium not well suited to organised effort.

    Some points that need to be considered:

    Who can co-ordinate a project?

    What are the objectives?

    To what extent do the objectives align with demands already made by organisations in the recent past which have not been responded to by the WHO and Dr Tedros, himself?

    Which department within the WHO would be responsible for liaising with a co-ordinator and collating and reviewing materials provided?

    What would the time-frame be for provision of materials?

    How would these be sourced?

    Can a Zoom meeting be convened with Dr G and colleagues to discuss how best to manage this project?



    I would be very wary of putting this in the hands of MEAction/Jen Brea

    see thread:

    Structural spinal problems and ME - blogs and social media

    https://www.s4me.info/threads/struc...gs-and-social-media.11138/page-54#post-282256
     
    Last edited: Aug 25, 2020
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  2. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Last edited: Sep 15, 2020
    Alton and JoanneS like this.
  3. mango

    mango Senior Member (Voting Rights)

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    Ever heard of "don’t count your chickens before they hatch"..?
     
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  4. Wonko

    Wonko Senior Member (Voting Rights)

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    Erm...counting chickens before they hatch always has one result, or should do - zero chickens.

    (This assumes that eggs come into existence in isolation, in a chicken free environment, but so does the saying.)
     
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  5. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  6. Cheshire

    Cheshire Moderator Staff Member

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    Posts relating to CCI haved been moved to this thread.
     
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  7. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Continued from Post #15


    https://www.eanpages.org/2020/01/09/news-from-the-who/

    January 9, 2020

    Meeting of WHO with EFNA, EAN and EBC to discuss brain health Report



    The WHO reps at this January 2020 meeting with neurology federations were: Dévora Kestel, Tarun Dua, Neerja Chowdhary, Katrin Seeher, Alarcos Cieza.

    According to this report, Dévora Kestel has replaced Dr Shekhar Saxena as Director of the WHO Department of Mental Health and Substance Abuse - the WHO Division that is also responsible for neurological disorders.


    https://www.paho.org/hq/index.php?o...-de-sustancias-de-la-oms&Itemid=42050&lang=en

    Dévora Kestel to direct WHO Department of Mental Health and Substance Abuse

    Dévora Kestel, Chief of the Mental Health and Substance Use Unit at the Pan American Health Organization (PAHO/WHO), has recently been appointed as the new Director of Mental Health and Substance Abuse at the World Health Organization (WHO). She will be replacing Dr. Shekhar Saxena, who has served in this position since 2010 etc.


    Dr Tarun Dua is a medical Officer at the WHO working on the Program for Neurological Diseases and Neuroscience, Management of Mental and Brain Disorders in the Department of Mental Health and Substance Abuse. She is the focal point for neurological disorders in the department.

    She specialises in dementia and epilepsy and has co-authored research studies here and here, neurological reports, guidelines and other publications for the WHO.

    https://www.alzheimer-europe.org/Co...es/2016-Copenhagen/Keynote-Speakers/Tarun-Dua

    I am working as a Coordinator in the World’s Health Organization Headquarters in the Department of Mental Health and Substance Abuse. I am the focal point for neurological disorders in the department. I am leading the work on dementia including the WHO/ADI report on dementia in 2012 “Dementia: public health priority”, organization of First WHO Ministerial Conference on Global Action Against Dementia, March 2015 and the development of Global Dementia Observatory. I have been involved in the development of the mhGAP Guidelines on mental, neurological and substance use disorders (including dementia) and the latest edition of Disease Control Priorities in Developing Countries’ volume on mental, neurological and substance use disorders (including dementia).​


    1 Full text of ICD-11 proposal submitted by Dr Tarun Dua (apparently on behalf of TAG Neurology) on November 06, 2017; Processed on November 19, 2018:

    https://dxrevisionwatch.files.wordp...1-proposal-dr-tarun-dua-november-06-201-1.pdf


    In January 2018, Chapman & Dimmock submitted a robust response to the Dua proposal: Full text of our response: http://bit.ly/2o8Gfbs

    On November 19, 2018, the WHO rejected the Dua proposal in a decision supported by the WHO Medical and Scientific Advisory Committee (MSAC) and the Classification and Statistics Advisory Committee (CSAC) stating:

    "In response to the many proposals on Chronic fatigue syndrome, the WHO Secretariat has conducted a vast amount of research.

    Findings: The condition is characterized by chronic, profound, disabling, and unexplained fatigue and coinciding symptoms such as sleep problems or post-exertional malaise. There is no agreement on a reliable diagnostic symptom pattern. The etiology is still being discussed and there is no uniform treatment approach with reliable outcomes. The only constant is the lead symptom ‘fatigue’ that persists over time.

    Decision: As a result of this study, the category ‘postviral fatigue’ that is the indexing target, will not be changed as currently there is no evidence to suggest a better place. The entity will retain its name and remain within the Nervous system chapter.

    The Medical and Scientific Advisory Committee and the Classification and Statistics Advisory committee supported this decision." Team3 WHO 2018-Nov-19 - 07:10 UTC

    -----------------------

    Katrin Seeher is a Technical Officer at WHO and a psychologist and dementia specialist.

    Dr Alarcos Cieza: Dr Cieza oversees the WHO's work on vision, hearing, rehabilitation and disability. Prior to joining the WHO in September 2014, she served as Chair and Professor of Medical Psychology at the Faculty of Social and Human Sciences at the University of Southampton, United Kingdom.


    Edited to insert additional text.
     
    Last edited: Aug 25, 2020
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  8. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    I have edited a number of posts in this thread that contain information about key WHO personnel to include the information that:

    Dévora Kestel has replaced Dr Shekhar Saxena as Director of the WHO Department of Mental Health and Substance Abuse - the WHO Division that is also responsible for neurological diseases and disorders.

    Ms Kestel appears to have held this position since at least October 2019.
     
    Last edited: Aug 25, 2020
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  9. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  10. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  11. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    I have also asked Dr John Grove (former Director of the Department of Information, Evidence and Research; now Director of Quality Assurance for Norms and Standards) who the current incumbent of the role of Director of the Department of Information, Evidence and Research is and was passed on to Dr Samira Asma (Assistant Director-General) for her to respond.

    Dr Samira Asma has not responded.


    I have also asked Dr Tedros Ghebreyesus, Dr Samira Asma and @WHO_Europe (twice now) whether WHO is developing terminology and ICD codes for Post COVID-19 syndrome (or a similar term). SNOMED CT is currently processing a request for a Concept code(s) for a Post COVID-19 syndrome (or similar term, subject to consultation with clinical bodies) submitted by someone within the NHS on August 19.

    None have responded to this query.


    I have also asked the WHO's Can Celik (by email) why the Orange ICD-11 maintenance platform page for Comments has been offline for over a week now.

    No response so far.


    Ah well, 'twas ever thus....
     
    Last edited: Sep 16, 2020
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  12. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  13. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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    Merged thread
    A systematic approach for undertaking a research priority-setting exercise: guidance for WHO staff, 2020, WHO


    https://apps.who.int/iris/handle/10665/334408

    World Health Organization. (‎2020)‎. A systematic approach for undertaking a research priority-setting exercise: guidance for WHO staff. World Health Organization.

    https://apps.who.int/iris/handle/10665/334408. License: CC BY-NC-SA 3.0 IGO


    PDF: https://apps.who.int/iris/bitstream/handle/10665/334408/9789240009622-eng.pdf
     
    Last edited by a moderator: Apr 21, 2022
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  14. Dx Revision Watch

    Dx Revision Watch Senior Member (Voting Rights)

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  15. Amw66

    Amw66 Senior Member (Voting Rights)

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    MSEsperanza, Hutan, MEMarge and 10 others like this.
  16. JemPD

    JemPD Senior Member (Voting Rights)

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    a great & hard won achievement well done & huge thanks
     
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  17. NelliePledge

    NelliePledge Moderator Staff Member

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    This thread is no longer fully moderated.
     
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  18. Andy

    Andy Committee Member

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    copied post
    https://www.who.int/news-room/featu...low-dose-anticoagulants-for-covid-19-patients
     
    Last edited by a moderator: Jan 28, 2021
  19. Hutan

    Hutan Moderator Staff Member

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    Does anyone know anything about the consultation?
    @Simon M
     
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  20. Andy

    Andy Committee Member

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    Copied from Possibility of ME or PVFS after COVID-19, Long Covid, and subsequent posts moved from that thread

    From a Solve email

    Solve M.E. President Oved Amitay Joins World Health Organization Seminar on Long COVID

    Solve M.E. President and CEO Oved Amitay will join other experts as a participant in a series of seminars presented by the World Health Organization (WHO) designed to improve our understanding of the Post COVID-19 condition and optimize the health of patients who have suffered from COVID-19.

    Amitay will be featured in the first webinar, Expanding Our Understanding of the Post COVID-19 Condition, held tomorrow, Tuesday, Feb 9, 2021, from 1-6pm CET (4 am-9 am PST). The focus of the webinar will be on finding consensus on the clinical description of Post COVID-19 condition, based on the most up-to-date evidence, acknowledging the uncertainties and defining research priorities.

    In it, Amitay will share insights from other post viral diseases, such as ME/CFS, and highlight the scientific opportunity to bridge existing knowledge gaps to benefit people with Post COVID-19 condition, as well other diseases.

    The goal of the WHO seminars is to create a forum for sharing scientific data and clinical experiences, while also building collaborations for future research.

    To register for this webinar, follow the link below:

    http://go.solvecfs.org/e/192652/ster-WN-r1LkC1VRSHCTG7u2nOghjQ/297v2z/190733399?h=Wv8fhTfVGesuyVqoh7OH5U8kSrHXNcT1CGthFLZ8-eY

    Upon registration, participants will receive a confirmation email with the information about joining the webinar (Zoom connection details).

    Registration will close on Feb 8, 2021 (end-of-day CET).
     
    Last edited by a moderator: Feb 15, 2021
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