Diane O'Leary
Established Member (Voting Rights)
This is exactly the problem, I think - that so many in such a powerful group think the global change in professional attitudes toward ME is invisible and non-existent.
IOM reports are powerful instruments of change in medical practice across the globe. For the IOM, the NIH and the CDC to agree that the term CFS should be retired, and for them to say ME/CFS is not a psychological disorder - that is the change you have worked to achieve. It means you have convinced these formidable authorities that you were right all along, and the Wessely/Sharpe school was wrong.
That movement in the US has convinced Denmark and Sweden to take ME seriously as a disease, and it has convinced NICE that the UK guideline must be revised. It has convinced the NIHR to fund the largest ever study of ME as a disease, and it has convinced NICE to shift over to the term ME/CFS in advance of the new guideline. Every single one of these changes is a monumental win.
If all of the authorities in this wonderful movement want to call the disease ME/CFS and the Wessely/Sharpe thing CFS, why wouldn't you support that?
IOM reports are powerful instruments of change in medical practice across the globe. For the IOM, the NIH and the CDC to agree that the term CFS should be retired, and for them to say ME/CFS is not a psychological disorder - that is the change you have worked to achieve. It means you have convinced these formidable authorities that you were right all along, and the Wessely/Sharpe school was wrong.
That movement in the US has convinced Denmark and Sweden to take ME seriously as a disease, and it has convinced NICE that the UK guideline must be revised. It has convinced the NIHR to fund the largest ever study of ME as a disease, and it has convinced NICE to shift over to the term ME/CFS in advance of the new guideline. Every single one of these changes is a monumental win.
If all of the authorities in this wonderful movement want to call the disease ME/CFS and the Wessely/Sharpe thing CFS, why wouldn't you support that?