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The Times: Chronic fatigue syndrome: ME families accused of child abuse

Discussion in 'General ME/CFS news' started by Andy, Jun 24, 2020.

  1. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,262
    most of the issues here have stemmed from school attendance.
    getting info to school nurses would be beneficial- lots of instances of simple disbelief in this group
     
    Kitty, Sean, JemPD and 6 others like this.
  2. 2kidswithME

    2kidswithME Established Member (Voting Rights)

    Messages:
    68
    Our issues stemmed from the SENCo, who two years into the saga proclaimed he’d never know anyone to stay ill for that long, and from then on disbelieved the medical letters and applied more and more pressure. When the second child fell ill, we were sunk from the start, even tho first child had by then seemingly recovered.
     
    Kitty, Sly Saint, Sarah94 and 9 others like this.
  3. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    6,262
    Ah, we don't have SENcos
     
    Kitty, JemPD, Simbindi and 1 other person like this.
  4. ladycatlover

    ladycatlover Senior Member (Voting Rights)

    Messages:
    3,702
    Location:
    Liverpool, UK
    Kitty and Anna H like this.
  5. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    10,280
    Who they hell is he to think he knows better than experienced medical specialists?

    These tin pot dictators need oversight & reining in when their power goes to their head!
     
  6. Anna H

    Anna H Senior Member (Voting Rights)

    Messages:
    241
    Location:
    Sweden
    OK, thanks for letting me know. Strange:thumbsdown:.
     
    Kitty, ladycatlover and MEMarge like this.
  7. chrisb

    chrisb Senior Member (Voting Rights)

    Messages:
    4,602
    That would appear to be merely an expression of the limitations of his/her experience and all the more reason to rely upon the professional opinions provided rather than his/her own inadequate opinion.
     
    Kitty, 2kidswithME, MEMarge and 3 others like this.
  8. It's M.E. Linda

    It's M.E. Linda Senior Member (Voting Rights)

    Messages:
    917
    From what I can discover,
    History
    From 1996 to 2010, the SENCO Forum was hosted by the British Educational Communications and Technology Agency (BECTA). The Department for Education supported the Forum from 2010 to 2019. It is now supported by nasen (the National Association for Special Educational Needs). It has always been, and remains, an independent body.”

    (Taken from
    https://www.sendgateway.org.uk/whole-school-send/subject-specific-resources.html )


    Another place where SEN teachers obtain their information is from their Unions.
    The N
    ASUWT Seemed to have a lot of resources and, perhaps they too, could have some input from @PhysiosforME ?

    I remember there were some excellent publications by a well known UK ‘tweeter’,
    (Claire Tripp @chicaguapa ) who wrote articles for both Primary and Secondary age children with ME. Perhaps liaising with Jane Colby and the Tymes Trust would be the best approach to get more SENco’s aware of M.E.?

    https://www.nasuwt.org.uk/advice/in-the-classroom/special-educational-needs.html

    @chicaguapa articles:

    https://www.s4me.info/threads/uk-te...ght-to-carry-by-claire-tripp-2019.9338/page-2

    ETA Claire’s details and link.
     
    PhysiosforME, Kitty, Amw66 and 2 others like this.
  9. 2kidswithME

    2kidswithME Established Member (Voting Rights)

    Messages:
    68
    My only comfort was the parental grapevine indicated most of the parents also found him difficult to deal with. None of the more junior staff dared to stand up to him. Only when I was able to get past him and appeal to the head did we get suitable provision. We were very fortunate to have good medical support, the Gp even attended a couple meetings, wow. He has now moved on.
     

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