Moved from the NICE Guidelines thread Locally, we are tracking NICE NG206 for Children & Young People/adults up to age 25. Tilly and I are...
Given the recent admission Andrew Goddard: "There is reasonable evidence, for example, that graded exercise therapy helps a group of patients with...
Hundreds of families whose children suffer from the debilitating condition ME have faced child protection investigations in the past decade, The...
[MEDIA] ME is the biggest cause of long term sickness absence in schools [1]. 1 in 5 parents face child protection proceedings [2]. ME is not...
Programme on fabricated or induced illness (FII) on at 11:00 am UK time. Will be on website and app after broadcast. Trailer suggests includes...
Pretty good article from Vice about the reality of social services in the UK threatening sanctions against the parents of children with ME....
A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families . I didn’t get the...
https://www.bbc.co.uk/sounds/play/live:bbc_radio_five_live Some of our children have hyper mobility. On BBC Morning there was a mum and daughter...
A journalist is looking for a case study of parents of a child with ME who have had social services become involved inappropriately. [MEDIA] I...
Fiightback was set up to support those accused of FII, to fight for a an unbaised criteria, a fair investigasion and a pathway to rebuild the...
https://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.760921 Hannah A. Rapley - Department of Psychology, University of Bath, Bath, United...
Agenda: Safeguarding children with CFS, Pervasive refusal syndrome, Gathering evidence – the police experience [MEDIA] [MEDIA]
The whole concept of pervasive refusal syndrome scares me. It sounds exactly like severe ME, but where the patients refuse treatment. How can we...
The Norwegian Broadcasting Corporation (NRK) with article on ME and child welfare authorities. One of four parents with children with ME say they...
From earlier this year Matthew Hill reports for BBC's File on Four program "Children with ME"; Parents of children diagnosed with Myalgic...
https://twitter.com/_NathalieWright/status/928658062684106754 [MEDIA] She says stories can be anonymised where necessary. Nathalie Wright has...
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