Anyone know anything about this charity (apart from Countess of Mar is one of their patrons). They are on the NICE stakeholders list. I only found it because it gets mentioned a lot in this Parliamentary written evidence from c. 2014. https://publications.parliament.uk/pa/cm201415/cmselect/cmhealth/401/401vw83.htm price list for services: "Fees Lyn can arrange an initial telephone call with Dr Paul Worthley to assess the best way forward, up to 30 minutes being free of charge. Subsequent telephone consultations with Dr Worthley, are charged at a rate of £20 per 15 minutes. Dr Worthley can sometimes offer home visits, usually within the south/south-east of England. Depending on travel time, the cost is from £250. Counselling or emotional support with Ingrid Holmes or Linde Horseman is £20 for up to half an hour. Further information is available here. Spiritual accompaniment with Rev David Flagg is free for the first six sessions. A physiotherapy consultation with Sue Pople, by phone, is £20 for a 15 minute call. A home visit, usually within the south/south-east of England, would be from £180 . If you are in financial need please enquire about bursary support. "This model of care is ideal for the treatment of people with ME/CFS. The service should be expanded and a centre of excellence established, providing management support for people with ME/CFS". Dr Luis Nacul, Clinical Senior Lecturer London School of Hygiene and Tropical Medicine], Director CURE-ME, Principal Investigator UK CFS/ME Biobank " their website: https://www.metrust.org.uk/ eta: mainly wondering what their treatments are, anyone had any experiences of it. They rarely seem to come up on the political side of things but do report regularly (on their site) on Forward ME.