Esther12
Senior Member (Voting Rights)
An inevitably depressing thread. We need a post that links to all the the good Cochrane posts @Michiel Tack has been doing!
The UK
Crawley used the Cochrane review to defend one of her trials including GET to the ethics committee when some patients complained about safety. She quoted the number analyzed figure for the whole Cochrane meta analysis even though there was limited harms reporting from most trials.
The main difference seems to be the first symptom put forward: fatigue in CFS, pain in fibromyalgia.
Thanks @CheshireThere are no guidelines for ME nor CFS in France, where ME/CFS is often not considered as an autonomous entity (some kind of depression, or somatisation, or something close to fibromyalgia).
My personal situation is OK, because I've met understanding doctors, but it's very difficult for a lot of people.
https://www.mdlinx.com/physiciansense/heres-why-youre-always-tired-even-though-youre-healthy/Sedentary lifestyle
It seems like a paradox that we need to expend energy in order to feel energized, but that is indeed the case. Chronic fatigue syndrome, one of the diseases du jour, appears to be linked to sedentary living. A Disability and Rehabilitation literature review showed that people with CFS tended to be less active and have less isometric muscle strength. This, of course, prompts a chicken or egg question, but regardless, it’s food for thought. A Cochrane Library study makes it clear: CFS patients who exercise feel less fatigued.
I'm pretty sure it's just a content mill. One study is from 2011 and the Cochrane review is the 2016 version. Though it's not as if laziness like that was not common in real MD's and it's pretty much run-of-the-mill BPS.Does that blog merely demonstrate what was always said = that CFS was intended to include those whose complaint was TATT?
Yeah those are always cringeworthy. I remember a few old Wessely articles about ME and other older articles about similar psychosomatic ideas, how they are the talk of the town and how culture affects them because everyone is talking about them. All because the people around them are all involved in the same field. Literally "people are saying" because it is their own field of interest and they interact mainly with like-minded colleagues. Solipsists make very louzy physicians.Diseases du jour![]()
https://twitter.com/WorldEBHC/status/1307465757136125952
also posted hereI can’t remember whether this information re: HANDI guidelines is new or not