The heart-breaking experiences of mothers with ME (NZ Herald, Feb 2020)

Note from moderators:
First two posts copied/moved from thread here
https://www.s4me.info/threads/news-from-new-zealand-and-the-pacific-islands.4230/page-18#post-235524

New article in the NZ Herald from the Complex Chronic Illness Support team...
https://www.nzherald.co.nz/nz/news/article.cfm?c_id=1&objectid=12305695

"Local Focus: The heart-breaking experiences of mothers with ME"
Talks to that topic a bit. But also to how people with ME are not eligible for home care.

 

Moving video.

I only know a few words of Maori but I'm reasonably sure about the two words used in the article, no guarantees though.
koro=grandfather
mahi=work

 

I thought the video was excellent and not just applicable to those in NZ.

also available on Youtube

https://www.youtube.com/watch?v=14oT6mi8PVU

 

It was.

At the end, I found myself wishing the reporter had of actually interviewed the government people as opposed to reading their statement (that effectively undermined and dismissed what the patients reported).

But the govt people may not have wanted to appear on camera.

 

Yeah the end was weird. Most of the video is about how there is no available support and yet it ends with this statement that support is available, even though it's been established that ME is explicitly excluded by the video itself.

Basically like a report on a major storm that ends saying the authorities wish people a good sunny day during the storm. Really shows this is a disagreement over objective reality. Lying to and about sick people, as is tradition.