Sweden: ME clinic and Masano Health digital rehab for ME/CFS

Thank you @mango and @Ravn ❤️

 

News article in local newspaper pointing out suspected crime. Unfortunatly behind paywall.

https://www.vk.se/2022-10-24/projekt-om-mecfs-stoppas-misstankt-etikbrott


information also can be found on region Västerbottens page:
https://www-regionvasterbotten-se.t..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

Several local newspapers published the news at the same time: The ME clinic in Västerbotten is temporarily closing due to a "staff shortage". I hope that there are journalists who understand that this needs further examination.

SVT:
https://www.svt.se/nyheter/lokalt/vasterbotten/me-mottagningen-pa-nus-stanger-saknas-personal

Blogpost with linje to all my posts about the debacle (Google translated):
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

Very "interesting"..!

Thank you, thank you, thank you so much @MittEremltage

 

Thank you! It’s a little bit scary though that media just follows region Västerbottens lead and writes what they sayes.

 

The audit office of region Västerbotten is also investigates the ME clinic now. Their focus is the staff's connections to the for-profit company whose digital rehab the clinic also procured.

Google translated blog:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

A blog post about an article in a local newspaper in which Gabriella Eikelboom, manager of the ME-clinic speaks out about the auditor's office's ongoing review. She says, among other things, that she was not involved in the procurement at all, even though the procurement documents say something completely different. Media just tells what region Västerbotten tell them to say!

Google translated blog:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

Ridicilous

Thank you so much, @MittEremltage

 

Another article in Läkartidningen (a magazine for doctors) about ME-clinic in Västerbotten:

Via Google translate:

”Now the audit office wants an answer to how the Geriatric Center handled questions about fraud in the procurement and purchase of services from the company in question and whether two employees at the ME reception reported and had side work approved by the operations manager.

In a letter to the operations manager, audit director Richard Norberg states, among other things, that one of the two employees was the CEO of the company in question and that both have been initiators and participants in developing the company's digital rehabilitation services. Representatives of the audit office tell Läkartidningen that no response has yet been received.

Läkartidningen has contacted the two employees mentioned in the letter and received a response from one of them. »It is correct that the audit is looking into this and I absolutely believe it is best to wait for their investigation«, she states in an email.

The appeal board for ethical review has not yet made a decision on whether the project should be considered clinical research, according to Jörgen Svidén, head of the agency's office.

»The region has been given the opportunity to give its view on the matter and they have requested an extended response time, until the end of November. A decision will therefore probably not be made until after the turn of the year,« he states in an email to Läkartidningen.”

Link:
https://twitter.com/user/status/1593229983501410305

 

Based on what we've seen elsewhere, I'd expect the official investigation to find, regardless of what happened, that there's no real problem here and that whatever reasons for concern there were came about largely due to misunderstandings or perhaps some minor failure to follow certain procedures.

Maybe Sweden is better than everywhere else?

 

Most people are sticking their head in the sand here as well, just like everywhere else

 

Again and as always, many many thanks to @MittEremltage for excellent sleuthing and incredibly valuable reporting

Latest updates available here:
https://mitteremitage.wordpress.com/
https://twitter.com/mitteremitage/

What a ridiculous and infuriating mess, this whole project

 

Chronicle in newspaper Altinget från journalist Agnes Arpi about the ME-clinic and the lack of critical questions from media.


Google translated:

"A lot of articles have been written on the topic during the autumn, most of them based on the region's own press releases.

How could it turn out like this? That question still lacks an answer.

Society's moths have been pushed into motion. ME patients have long been able to be treated in any way, but even they cannot be treated in any way. Now the bureaucracy has to do its thing and one can hope that it does not lead to the patients north of Stockholm once again being left without examination and treatment.

But there is a sour aftertaste.

I doubt that anything would have happened at all if it weren't for the ME patients themselves."

https://twitter.com/user/status/1599631652115738624

 

Brilliant! So so good to see how much credit she gives to @MittEremltage as well - really well deserved!

 

New post on the blog! Masano Health AB has updated its website and markets itself through the project and the procurement, which is under review for suspected crimes.

Google translated:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

Disgusting

 

The Västerbotten Region have now reportef a suspected fraud in the procurement at the ME clinic to the police!

Article in the local newspaper Norran:
https://norran.se/nyheter/vasterbot...onen-personal-det-ar-ratt-allvarligt/jn7kz40l

Short blog post translated with Google:
https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

The police have now begun an investigation into suspected corruption according to a local newspaper (Norran):

Summary in a Google translated blog post:

https://mitteremitage-wordpress-com..._sl=sv&_x_tr_tl=en&_x_tr_hl=sv&_x_tr_pto=wapp

 

"We ME sufferers have the same right to safe and good care, ethical and methodologically sound studies as everyone else. Criticism of research is part of the scientific process and scrutiny of care is part of a democratic society."