Solve ME/CFS Initiative: Discovery Forum 2017 Highlights: ME/CFS and Gulf War Illness

[Andy]

Brief interview with Nancy Klimas, talking about her work in ME/CFS and Gulf War Illness, as well as a section from her recent talk at Solve's Discovery Forum.

 

[Sasha]

Holy crap - that was fascinating, for all sorts of reasons.

Thanks for posting, @Andy.

 

[Trish]

Wow! They are doing some amazing work with Gulf War Illness. What a pity ME turns out to be clinically the same but biologically different so the same drugs they are about to try won't be relevant for us, though of course I hope it works for the veterans.

I hope they can get the funding to do the same process for us.

 

[Sly Saint]

Anyone told Simon Wessely (who got his knighthood largely for his 'work' with GWI) ?

 

[Skycloud]

That's just fascinating. Somebody give Klimas and her team lots of money for ME!

 

[Jan]

Fascinating and heart breaking at the same time, so happy for GWI's but it says so much about the lack of funding for ME.

 

[meandthecat]

Nancy K versus Esther C........spot the difference. A whole world of difference, or maybe two.
Thanks for posting

 

[Sly Saint]

Malcolm Hooper is the President of the national Gulf Veterans and families association (NGVFA) in the UK.
I've just been looking at their website. http://www.ngvfa.org.uk/

A lot of them seem to get diagnosed with CFS, IBS, Fibro (amongst a multitude of other things).

There is a link to
Health of Veterans' Research Team (HVRT) supporting the work of the Medical Advisory Committee, Sponsored by, and based at, King Edward VII’s Hospital in London
https://hvrt-mac-veteranshealth.org/

it seems to be predominantly biomedical research.

I can't find anything on either website on Nancy Klimas' work tho'.

Just wondered if it might be worth contacting NGFA info@ngvfa.org.uk to let them know about S4ME?

eta:
"
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in Gulf War Veterans
Gulf War Veterans who develop Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) do not have to prove a connection between their illnesses and service to be eligible to receive VA disability compensation. ME/CFS must have emerged during active duty in the Southwest Asia theater of military operations or by December 31, 2021, and be at least 10 percent disabling."

"A study on Gulf War Veterans' health by VA found that 1990-1991 Gulf War deployment is associated with an increased risk for ME/CFS, fibromyalgia, skin conditions, and dyspepsia."

https://www.publichealth.va.gov/exposures/gulfwar/chronic-fatigue-syndrome.asp