Sign! Unrest' US & global petitions for more ME/CFS research funding

[Sasha]

Part of the 'Unrest' campaign.

For US folks, a call to the NIH to fund ME/CFS research equally and fairly:

https://www.unrest.film/nih-petition

For everyone, 'We call on every government in the world to formally recognize ME and sufficiently fund research at the levels needed to treat and, ultimately, find a cure.'

https://www.unrest.film/global-petition

Pile on, folks! Both currently about 1200 signatures.

 

[MeSci]

Done, and comment added.

 

[Kalliope]

Done. And will share, but could anyone please tell me if this is a brand new petition or has it been going on for a while? I don't recall having heard about it before..

 

[Sasha]

Done. And will share, but could anyone please tell me if this is a brand new petition or has it been going on for a while? I don't recall having heard about it before..

It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long.

...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're showing the same totals). They're both about a month old.

 

[Kalliope]

It's a new one on me, which is why I posted it. And it has quite low numbers for a thing pushed out by the Unrest team, which suggests it hasn't been going long.

...just had a quick look on meaction.net and they seem to be the same ones as on there (I think they're linked because they're showing the same totals). They're both about a month old.

Thanks, @Sasha Let's get those numbers up!

 

[BruceInOz]

From the petition:

ME medical costs and lost productivity result in an estimated US $20 million each year.

This is far too low isn't it? If there are 1 million sufferers in the US that's only $20 each per year.

 

[Hutan]

Good point. And that sentence appears in the Global petition in a context that suggests that it applies to the worldwide population. In which case it is of the order of $1 of annual medical costs and lost productivity per person with ME.

ETA: Have signed

 

[TiredSam]

Signed.

 

[Sasha]

From the petition:

This is far too low isn't it? If there are 1 million sufferers in the US that's only $20 each per year.

I wonder if that should be 'billion'?

Good point. And that sentence appears in the Global petition in a context that suggests that it applies to the worldwide population. In which case it is of the order of $1 of annual medical costs and lost productivity per person with ME.

Worth contacting #MEA with these good points? (Sorry I am unable.)

 

[Hutan]

Worth contacting #MEA with these good points? (Sorry I am unable.)

I've sent a message to the Unrest team about the estimated annual medical costs and lost productivity, using the Contact facility on the website.

I don't think the MEA is the right organisation to contact.

 

[Sasha]

I've sent a message to the Unrest team about the estimated annual medical costs and lost productivity, using the Contact facility on the website.

I don't think the MEA is the right organisation to contact.

Good idea to contact the Unrest team! (I meant #MEAction rather than the ME Association, but either way, the Unrest team is the better choice. )

 

[Inara]

Thanks for sharing, I signed it.

 

[Andy]

Signed and shared.

 

[BruceInOz]

Done

 

[Sly Saint]

I think these petitions have been forgotten(?)

https://www.unrest.film/nih-petition/
https://www.unrest.film/global-petition

I signed both.

The numbers are very low (both around the 2,000 mark); I'm surprised with all the coverage of UNREST that they (the petitions) have not been shared more (?)

eta:
someone used this link on twitter but its only for the first petition
https://t.co/RCPYhzreOb

 

[Andy]

This URL allows you to choose between the two - https://www.unrest.film/time-for-unrest/#advocate, a short version of that is http://bit.ly/2APMVjh, in case it's of use to anyone.