Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

Invisible Woman said:
I'd go further and say they if they were genuine they wouldn't have used the word "recovery" in the first place.
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The use of "recovery" was a distortion of English. In the text, they said that "recovery" in their use only meant "recovery from the current episode." So they meant "remission" at best. And they deflected criticism of their use of "recovery" at one point by saying, well, we explained what we meant in the paper itself. But of course they didn't object to headlines proclaiming that "recovery" is possible.

In their use of language, words like "recovery" have no fixed meaning. They mean whatever White et al want them to mean at that moment.
 
Woolie said:
I absolutely hate the idea that's wrapped up in this statement - that we sort of brought this on ourselves. We're supposed to regret the lifestyle choices we made when we were well because they "caused" us to get sick. We worked too hard, played too hard, drank too much, or weren't sufficiently happy or fulfilled. This self-blaming idea is yet another of the harms that psychological therapy can do to us
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The specialist nurse (paediatric) tried suggesting that it was the stress of GCSE's that caused my daughter's ME!!
She developed it after viral labyrinthitis in the October, so at least 4 months after her exams finished.
It was in the days when there was a fair amount of coursework and exams that counted towards final marks happening the previous year.
Therefore NOT loads of pressure for the final set of exams. She's bright, had worked steadily and done well prior to them. She was NOT that stressed at all.
 
Invisible Woman said:
There's no need to go torturing the meaning of the word until it squeaks. There are plenty of perfectly good words that are far more accurate they could have used such as improvement, remission etc.
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They should emphasize on functionality- how well the person deals with his or her life and environment after trauma/illness. There are different levels of disability.
 
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