Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

[Hutan]

Note some of the comments describing falling over each other to perform such interventions.

Yeah, it is interesting to compare and contrast. The things doctors seemed to be lining up to do were:
Recognisable complaint;
easily, instantly and certainly fixed, with a big difference between the before and after;
therefore, an extremely grateful patient and family;
doctor able to move on quickly, feeling competent and appreciated

All the things ME/CFS is not.

 

[Chandelier]

Is this S4ME condensed into a meme?

 

[SNT Gatchaman]

That's brilliant, thanks @Chandelier

 

[BrightCandle]

Out of interest, has anyone else noted that your typical long covid patient is often similar to your typical fibromyalgia/chronic pain/POTs/CFS etc patient?

The “pink hair sign” is definitely something I’ve noticed

There are signs of connections between neurodiversity and fatigue-related disorders.. I don‘t think that‘s a coincidence

Lol you don't know anything about how I practice. I'm actually far more understanding of these sort of patients than most other GPs I know.


There are ofcourse some who have clear evidence of complications related to covid. Lung scarring, heart failure etc but most of the time extensive investigations come back as normal. It would be disingenuous to ignore a pattern here.


Are you saying that you haven't noticed similarities? I don't think it's unreasonable to suggest that there may be a similar underlying pathology, whatever that may be?

There is a clear pattern of patients who have unexplained medical symptoms. Should we ignore that? Or use that information to better treat them?

 

[V.R.T.]

The “pink hair sign” is definitely something I’ve noticed

The smug, naked, paternalistic misogyny of this shit.

And oh look- neurodivergent = silly children who don't understand their own bodies.

Medicine needs a thorough and vigorous shake up. It would be like if police training actively and openly encoraged officers to be racist (rather than doing it on the sly)

 

[Ranma]

Yes definitely - usually have a streak of purple hair too

Ah yes the classic diagnostic criterion "purple streak of hair", which is mentioned somewhere between the chapters "evidence-based practice" and "basic human decency". I, too, often confuse personal style with pathology.