Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

[Evergreen]

@Jonathan Edwards,

I should know better than to question your diagnostic descriptions , but did the "chronic widespread unexplained pain" include joint pain? I always assumed the fibromyalgia diagnosis excluded joint pain and was chronic widespread unexplained neuromuscular pain, but I am a lay person who lives in the USA, so I may be way off base.

Oh you've just reminded me of a rheumatologist I saw. Every time I said "joint pain", they would correct me with "muscle pain". "Joint pain" seemed a reasonable way to me to descibe pain in shoulders, elbows, hips, sacroiliacs etc. But no. I wasn't allowed say it.

 

[Jonathan Edwards]

I should know better than to question your diagnostic descriptions , but did the "chronic widespread unexplained pain" include joint pain? I always assumed the fibromyalgia diagnosis excluded joint pain and was chronic widespread unexplained neuromuscular pain, but I am a lay person who lives in the USA, so I may be way off base.

The history of the diagnosis is a grand muddle. Some of the tender points are muscle, some are bony. I don't think there was any consistent conception. (And the tender points were abandoned.)