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PPS new name for MUS - Integrated Care for People with Persistent Physical Symptoms 02/10/2018

Discussion in 'General ME/CFS News' started by Sly Saint, Nov 16, 2018.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Event in October this year:
    "
    Event Details
    The words ‘Integrated Care’ currently feature in every health briefing, newsletter and policy document, but what exactly does it mean and what does it look like in practice? For people with Persistent Physical Symptoms as a result of a long term conditions and/or disturbance of function, treating physical, psychological and social needs in tandem is key to getting the best outcomes in terms of morbidity, mortality, quality of life and cost.

    This event, sponsored by the Academic Health Science Network on behalf of the Integrated Care System, proposed a region-wide model of care for people with Persistent Physical Symptoms."

    Includes various workshops including:

    "Findings from Research Working with General Practice to Improve Pathways for People with Persistent Physical Symptoms
    • Prof. Vincent Deary, Professor of Applied Health Psychology, Northumbria University and Joanne Smithson, Programme Lead, AHSN NENC"

    PPS seems to be another name for MUS.

    http://www.ahsn-nenc.org.uk/event/integrated-care-for-people-with-persistent-physical-symptoms/

    it was covered on Twitter https://twitter.com/search?q=#PPSNENC&src=typd

    Julia Newton was involved; why?

    see also:
     
  2. pteropus

    pteropus Senior Member (Voting Rights)

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    i'm waiting for the peak-farcical moment when broken legs (and every other human injury / disease) are treated with online CBT.
     
  3. alex3619

    alex3619 Senior Member (Voting Rights)

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    I have said before they should bring CBT to funeral homes and morgues. I mean the kind of CBT they propose for ME and CFS is basically magic, how is that different from Voodoo? Let them raise the dead, then all those pesky life assurance claims can be put aside. If anyone is unsure, yes this is a satirical comment.
     
  4. Cinders66

    Cinders66 Senior Member (Voting Rights)

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    Yes why is Julia newton there. Vincent Deary is not good, I’ve just been reading the kings College London fatigue service website which hasn’t been updated for years. Vincent Dearys views are Entirely deconditioning reversible with rehabilitation.
     
  5. rvallee

    rvallee Senior Member (Voting Rights)

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    I, for one, suggest the far more useful diagnostic criterion of PBS: persistent bullshit syndrome. Or its cousin diagnosis of SAS: shifting acronym syndrome.

    It's a disease characterized by projecting motive and intent onto patients in a framework of unhelpful illness beliefs on the part of the therapist.

    It's unfalsifiable, allowing the therapist to constantly shift and morph their own beliefs onto the diagnosis, and provides a steady stream of income for those unable to perform actual scientific research or useful clinical work.

    Recommended reading includes studies of prophesizers and their shameless ability to be 100% confident of every new variation of the same predictions.
     
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  6. Inara

    Inara Senior Member (Voting Rights)

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    This is getting ridiculous. It should be viewed as ridiculous.

    What are they aiming at? It is known there are dumb people, but I very much doubt these people don't know their own concepts (FSS, BDD, BDS, MUS, FND etc., now PPS), and I doubt there is no agenda. What's the agenda? Do they want to create so much confusion that people don't even try to understand and "trust" these "experts" know? Or do they only want to look like experts?
     
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    From what I have read I think they 'created' PPS as they thought it would be 'more acceptable' to patients than MUS, MUPs.
    The ultimate aim, I guess, is to save money, under the guise of 'Integrated Care'. Unfortunately, what they don't seem to realise is this will just lead to diluted/ineffective treatment for a large number of patients. What is needed is more specialist care.

    They are learning this (although you would have thought it would be obvious) the hard way with Mental Health and the IAPT approach which is proving to be totally cost ineffective.
     
  8. NelliePledge

    NelliePledge Senior Member (Voting Rights)

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    Utter Tripe Syndrome :sneaky:
     
  9. Alvin

    Alvin Senior Member (Voting Rights)

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    Rebranding, the last recourse of the desperate
     
  10. alex3619

    alex3619 Senior Member (Voting Rights)

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    Its not just diagnoses. Look at PACE. Meanings change. Recovery that overlaps with serious disability. Pacing that is not pacing. Normal that is highly abnormal and wrong. They play with language and hope nobody notices.
     
  11. Alvin

    Alvin Senior Member (Voting Rights)

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    Thats a house of cards, yet another reality denying tactic among so many.
    We need to give up the lies to make progress because reality is a cruel mistress.
     
    Last edited: Nov 21, 2018
  12. alex3619

    alex3619 Senior Member (Voting Rights)

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    There is a saying, attributed to Philip K Dick, that reality is that which, when you stop believing in it, doesn't go away.
     
  13. Alvin

    Alvin Senior Member (Voting Rights)

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    Interesting. I view it pragmatically, reality denial leads us away from actually solving problems by pretending cold hard facts are too much to bear
     
    Last edited: Nov 22, 2018
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  14. Sean

    Sean Senior Member (Voting Rights)

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    This. They have created a space in which they can never be pinned down by facts and logic.
     
  15. Sarah

    Sarah Senior Member (Voting Rights)

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    For interest, I had a bit of a Google to see what early references I could find on the exact term, 'persistent physical symptoms'. I'm sure it can be traced back further, but the earliest references I've encountered so far online are found in a couple of late 90's publications co-authored by a Charles C. Engel, who has a military psych background, a document of Congress hearing on GWI healthcare (for which hearing Charles Engel was a witness), and a paediatric anxiety scale (July 1997).

    Another American Engel, George Libman Engel, who was also based out of the East Coast, was the originator of the biopsychosocial model of health and illness (1977).

    VA'S Health Care Treatment for Persian Gulf War Illnesses
    , Hearing before the subcommittee on health of the committee on veterans' affairs - House of Representatives One hundred Fifth Congress First Session, 19 June 1997
    https://www.gpo.gov/fdsys/pkg/CHRG-105hhrg44671/pdf/CHRG-105hhrg44671.pdf
    The precise term, PPS, isn't used by Engel in the quoted text, but is used elsewhere.

    Multidisciplinary Treatment of Persistent Symptoms after Gulf War Service
    Maj Charles C Engel Jr; Maj Michael Roy; LtC Daniel Kayanan; Col Robert Ursano
    Military Medicine, 163, 4:202, 1998
    https://tinyurl.com/ydakxlvs

    Appendix A: Population and Need-Based Prevention of Unexplained Physical Symptoms in the Community
    Charles C. Engel, Jr., and Wayne J. Katon
    Strategies to Protect the Health of Deployed U.S. Forces, Editors: Lois M. Joellenbeck, Philip K. Russell, and Samuel B. Guze.
    1999, Institute of Medicine (US) Medical Follow-Up Agency
    https://www.ncbi.nlm.nih.gov/books/NBK225085/

    Charles C. Engel:

    https://www.rand.org/about/people/e/engel_charles_c.html

    https://www.researchgate.net/profile/Charles_Engel/2

    George Engel:

    https://en.wikipedia.org/wiki/George_L._Engel

    Children's anxiety rating scale:
    https://tinyurl.com/ycxjtny7
     
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  16. Cheshire

    Cheshire Moderator Staff Member

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    There's also researchers' ego at play. Deary favors PPS, and he pushes for its use, Per Fink has his Bodily distress disorder (or something approaching), Jon Stone states that "functional" is the best term, because it is more accepted by patients, John Sarno called unexplained pain TMS (Tension myositis syndrome).
    Pathetic race.
     
  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "Acronyms of ignorance"

    https://www.s4me.info/threads/gover...lishing-the-bps-model.2319/page-3#post-123982
     
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  18. JemPD

    JemPD Senior Member (Voting Rights)

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    :D thank you for that much needed giggle @rvallee


    Exactly.


    War is peace
    Freedom is slavery
    Ignorance is strength
     
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  19. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Chalder has contributed a chapter on MUS in the latest edition of this book (Nov 2018)
    The Therapeutic Relationship in Cognitive Behavioural Therapy

    8. Medically Unexplained Symptoms David McCormack & Trudie Chadler



    They try explain why they now apparently prefer PPS to MUS
    upload_2018-12-2_12-37-44.png



    upload_2018-12-2_12-45-2.png


    https://uk.sagepub.com/en-gb/eur/th...itive-behavioural-therapy/book257330#contents

    so we also now have PUS (persistent and unexplained symptoms) or UPS(?)

    eta: I only read a couple of pages but looks like this entire chapter is viewable on Google books
     
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  20. rvallee

    rvallee Senior Member (Voting Rights)

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    moving_goalposts.exe running
     
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