Binkie4
Senior Member (Voting Rights)
I agree that we are under no obligation to follow Cochrane’s injunction to only communicate through their formal complaints channel. Indeed there seems to be little prospect of any communication with their complaints channel achieving any thing other than further obfuscation and prevarication.
The options seem to be:
- Lobbying individuals within Cochrane who might actually listen
- Lobbying any of Cochrane’s funders
- Complaints to the charity commission
- Complaints to ? (I have forgotten the name of the group that oversees publication standards)
- General publicity on the relevant issues
- ?
I agree Peter. Cochrane have no wish to communicate constructively with the patient or scientific community.
edit: if I were to be in a position to write which unfortunately I am not, I would consider writing to my MP who last week committed to going to the APPG. He is a new MP and hopefully, the APPG will have introduced him to some of the issues around ME. My last MP Ed Davey would sometimes send on my communications with him to an appropriate person in government. It all helps I think.
edit 2: I've just Wikied Andrew Gwynne and read that in 2020 he had long covid for 16 weeks. Would this have given him any insight into ME, and helped him develop valid views on exercise in ME?
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