Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

“The 2019 version of the review has undergone thorough editorial scrutiny and the matter is closed” gives us no indication of whether this was the previous editorial scrutiny that led to the publication of the 2019 redraft and the associated attached note, or if there has been a more recent ‘scrutiny’, possibly in response to our current round of communication.
I think it's clear they are referring to the endless rounds of editing the 2019 review underwent before it was finally published. It hasn't been altered since 2019.

Note: ‘the coming weeks’ seems to be an elastic term as it has been used by Cochrane about this anticipated update in previous communication some weeks ago.
So that would be well over 100 weeks so far since they last promised an update in a few weeks.
 
I think it's clear they are referring to the endless rounds of editing the 2019 review underwent before it was finally published. It hasn't been altered since 2019.

I think you are right, but I suspect the wording is deliberately vague in order to give readers the false impression that they have seriously addressed more recently the issues we raised, as the conclusion of of the editorial process around the 2019 redraft was that it was grossly inadequate and needed to be urgently superseded by an entirely new process, hence the Independent Advisory Group.
 
A discourteous reply.
Yes, and they didn't even look carefully enough to see that we had copied the IAG into the letter.
Cochrane said:
For any new concerns about this topic, the process is to pass them to the Independent Advisory Group to inform their work. Please could you confirm if you are happy for us to share this correspondence with them so they can take your requests into consideration?

That would be the IAG that has not answered any communications for the last two years. That would be the IAG that is only an advisory group - the clue is in the name 'Independent Advisory Group'. Us trying to talk to them about the 2019 review is doubly futile as, not only do they not reply, but they have no control over what happens with that review.

And the removal of the 2019 review is the thing that matters. The new review process is a side show, a distraction that Cochrane believes allows them to kick the question of the 2019 review removal further down the road.
 
The forum committee received a reply today, posted on the letters thread and copied below so members can discuss it.
________________


Thank you for your email.

The 2019 version of the review has undergone thorough editorial scrutiny and the matter is closed.

For any new concerns about this topic, the process is to pass them to the Independent Advisory Group to inform their work. Please could you confirm if you are happy for us to share this correspondence with them so they can take your requests into consideration?

The Independent Advisory Group is seeking to address questions beyond the scope of the 2019 review, and we hope to share a progress update from them in the coming weeks.

Cochrane does not have the resource to hire project managers for individual reviews. A former member of staff helped to set up the Independent Advisory Group, which is now self-managing.

Kind regards,
Office of the Editor in Chief

____________________


One aspect of the manner in which the author of this letter from Cochrane addresses us here is that it seems the author cannot afford the ordinary pleasantries of written correspondence.

On the one hand I think this may be taken as a mask off moment. Look at who we really are and see that you and yours are no match for me and mine. See our might and tremble.

Do not think that your type can exceed your station. Your attempt to medal in your superiors business is intolerable. Your ilk are not to be afforded the conventions of polite address. We do not owe you a single drop of respect.

Cochrane dismiss, via written word or unbroken silence the subjects of their work. Year upon year.

By this history and by this latest much belated letter from the Cochrane administration, might we guess that they are insulted?

How after all these years do we still have the temerity to question their establishments actions and inaction?

What right do we have to seek authority over our own lives?

Who do we think we are?
Who do we think they are?

Perhaps this petulant and inadequate missive is intended to remind us, to reinforce the establishment view on these questions.

Perhaps in the face of a wider issue of reputation decline and economic uncertainty on the future of Cochrane the attitude struck in this communication with us their subjects, is intended along with its attempt to issue a final act of dismissal “the matter is closed” to offer themselves reassurance, that they do actually still possess their self granted authority to make such a decree. A display of naked dominance.

I’ve become aware that in a society such as this one the ability to compromise is important. Well, along with the unspoken yet unmistakable presence of a caveat. One that informs us all that this is to apply to the underdog and the underdog only.

So, as the underdog in this scenario let me take a moment to acknowledge that yes between us, so far, they really are the dominant entity here. I with agree them in this assessment. I therefore understand the rationale of their decision to speak to us in a manner of which they would not speak to those that they consider their own equals. Certainly they surely would not reply to a question from an interviewer for a promotion to sort after professional position in such a tone.

Indeed Cochrane has been mauling us in this pit, for years, to fatal effect. We have lost many. We continue to fall to the ravages of their dominance. They have authority over our existence.

Cochrane maintain, for the moment, access to the institutional keyboard, with which they have chosen to deny us reprieve.

I hope this acknowledgement from below offers Cochrane a little of reassurance they seek.


To conclude we have established ability as expert compromisers, permit us to elucidate upon other aspects of our position, as long standing members of the underdog or subject class. The matter remains open while your jaws clamp our necks and beyond, our decision.
 
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Perhaps this petulant and inadequate missive is intended to remind us, to reinforce the establishment view on these questions.
Or perhaps anyone who knows anything about this is busy with mask issues or trying to find some funding or something. And so the office intern, who knows nothing and doesn't care, was told to 'write something'. Either way, we do get to the same point.

But yes, we aren't going anywhere. And with each additional nonsensical reply, the story just gets more fit for the telling.
 
Or perhaps anyone who knows anything about this is busy with mask issues or trying to find some funding or something. And so the office intern, who knows nothing and doesn't care, was told to 'write something'. Either way, we do get to the same point.

But yes, we aren't going anywhere. And with each additional nonsensical reply, the story just gets more fit for the telling.
Maybe…
My feeling is that the standard office response would need to be more polite than this one is, otherwise office staff might need to re trained or replaced. Or perhaps they really are all this inadequate at communicating with others and that is a contributing factor for their financial difficulties.
 
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Maybe…
My feeling is that the standard office response would need to be more polite than this one is, otherwise office staff might need to re trained or replaced. Or perhaps they really are all this inadequate at communicating with others and that is a contributing factor for their financial difficulties.
To be fair, the email did start: Dear Trish Davis. (Our letter was signed with my name on behalf of the committee.) But someone the letter was addressed to really should have been prepared to put their name to signing it.
 
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To be fair, the email did start: Dear Trish Davis. (Our letter was signed with my name on behalf of the committee.) But someone the letter was addressed to really should have been prepared to put their name to signing it.

Umm. I noticed that they used Dear and kind regards but what else could they do?
Certainly made up for this by a failure to sign it, along with the causal dismissal of the content. They had been written to on the subject of other human beings health and welfare and your reference to previous failures of communication.

When you contemplate the subject matter their reply only looks worse and worse.

Besides which who exactly is it informing us that the matter is closed?
 
Umm. I noticed that they used Dear and kind regards but what else could they do?

Politeness/formality can be a very English way of showing aggression or trying to assert dominance. Also to address a message to a named person rather than the organisation, but then to fail to identify the sender by name only by organisation is either a play for dominance or an attempt to avoid taking responsibility.

I am not sure where the Editor in Chief’s office is based, but trying to find this out I was struck by the irony of Cochrane’s description of Karla Soares-Weiser:
Karla Soares-Weiser, MD, PhD, MSc, is the editor-in-chief of the Cochrane Library, one of the most reputable sources of best evidence worldwide. A board-certified clinician, she also has a doctorate in evidence-based health care and has been working in this field since 1997. She is the author of over 60 Systematic Reviews, including 33 Cochrane Reviews. She has held numerous positions in Cochrane Groups, including the Iberoamerican and UK Cochrane Centres, where she provided training in systematic review production. Outside Cochrane, Dr. Soares-Weiser has held academic faculty positions in Brazil and Israel and established her own consultancy business providing evidence synthesis services to government agencies and not-for-profit organizations. As editor-in-chief, Dr. Soares-Weiser is responsible for ensuring that the Cochrane Library meets its strategic goals of supporting health care decision-making by consistently publishing timely, high-priority, high-quality reviews and responding to the needs of its many users.
though of course Cochrane may not count us amongst their ‘users’.
 
Politeness/formality can be a very English way of showing aggression or trying to assert dominance. Also to address a message to a named person rather than the organisation, but then to fail to identify the sender by name only by organisation is either a play for dominance or an attempt to avoid taking responsibility.

I am not sure where the Editor in Chief’s office is based, but trying to find this out I was struck by the irony of Cochrane’s description of Karla Soares-Weiser:

though of course Cochrane may not regard us as their ‘useres’.

Yes indeed it is. You’re quite right. I’d go for two for one deal, a play for dominance and an avoidance of responsibility.
 
The forum committee received a reply today, posted on the letters thread and copied below so members can discuss it.
________________


Thank you for your email.

The 2019 version of the review has undergone thorough editorial scrutiny and the matter is closed.

For any new concerns about this topic, the process is to pass them to the Independent Advisory Group to inform their work. Please could you confirm if you are happy for us to share this correspondence with them so they can take your requests into consideration?

The Independent Advisory Group is seeking to address questions beyond the scope of the 2019 review, and we hope to share a progress update from them in the coming weeks.

Cochrane does not have the resource to hire project managers for individual reviews. A former member of staff helped to set up the Independent Advisory Group, which is now self-managing.

Kind regards,
Office of the Editor in Chief

____________________
They could have just replied with a poop emoji. Same thing, really.
 
This reply, in image form:
vultouri.jpg
 
Cochrane does not have the resource to hire project managers for individual reviews. A former member of staff helped to set up the Independent Advisory Group, which is now self-managing.

Anyone willing to graciously offer their expertise for free? With a panel of knowledgeable patients you could probably hammer this thing out in a matter of weeks. Or just, you know, copy from NICE.
 
It seems to me that if the Independent Advisory Group are now self-managing then it is completely within their power to put out a statement that might go someway towards reassuring the community.

Or if they feel that is not possible to do as a group then those members who are part of the community could actually let us know why they think a process, that looks to us an absolute disaster, is still viable.
 
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