The initiator of the petition, Nina Steinkopf, has written a letter to the editor based on this article and how the senior doctor at the National center of excellence for CFS/ME dismissed any criticism.A newssite for research has written an article about the petition. I don't know if the title has a good translation, but hope the meaning comes through.
Forskningno: Trist at ME-aktivistene går i skyttergravene
google translation: Sad that the ME activists goes into the trenches
Senior doctor for the national center of excellence for CFS/ME says the claims in the petition is incorrect. She further says that they believe CFS/ME probably is linked to both body and soul and that isn't possible to strictly distinguish between psyche and soma. Their service should try to cover everyone, both those who say ME is a mental illness and those who say it is physiological. The fact that they get critiqued from both sides of the debate is hopefully an indication that they are able to keep the balance.
The petition has 2150 signatures by now.
I think it's actually your browsers dictionary that is determining that. Ctrl+click should give you the option to add the word to the dictionary.I like that the autocorrect at this forum doesn't accept the word biopsychosocial. The word always gets a red line underneath and I couldn't agree more.![]()
Oh, so that's the explanation. Thanks for the advice on how to change it. Might use that for other words, but for this word I'll keep it as it is.I think it's actually your browsers dictionary that is determining that. Ctrl+click should give you the option to add the word to the dictionary.
It seems the website has done some changes, so it is not possible any longer to see the names to those who have signed. Seems to be the same with the other petitions as well. Not sure why..2999 signatures.
How do you check the list of names? Want to double check that I did it right.
Nice to see that the website has tweeted the initiator of this petition, Nina Steinkopf's letter-to-the-editor.The initiator of the petition, Nina Steinkopf, has written a letter to the editor based on this article and how the senior doctor at the National center of excellence for CFS/ME dismissed any criticism.
Det er ikke uventet at lederen for Nasjonal Kompetansetjeneste for CFS/ME avviser kritikken
google translation: It is not unexpected that the head of the National center of excellence for CFS/ME dismisses any criticism
She writes that the National center of excellence for CFS/ME still maintains a biopsychosocial approach to ME, with emphasis on psychosocial. The senior doctor from the center has previously stated that she believes ME is probably linked to both body and soul. Nina Steinkopf reminds us that "soul" is a religious term and doesn't give much confidence when used by researchers and health care personell.
She links to an article by a psychologist comparing Lightning Process with how religious leaders have used suggestive techniques in order to "cure" homosexuality. She reminds that the leader of the National center of excellence for CFS/ME thinks the SMILE-study is "exciting" and that it is important for ME patients to get both Lightning Process and help from professionals.
The method is defined as alternative treatment by the Norwegian Directorate of Health, The Consumer Ombudsman and the National Research Center in Complementary and Alternative Medicine. The latter has sendt warnings about Lightning Process to health authorities due to reports from patients of deterioration.
She questions whether the National center of excellence for CFS/ME is correct when claiming to manoeuvre through research in the field, including biomedical research. According to Invest in ME, the senior doctor did not attend the conference this year and is no longer invited to the colloquiums.
She also points out that the senior doctor still supports the PACE trial and the Cochrane review, even though they've been taken apart.
With these views, the doctor contributes to maintain the level of conflict and the desperate situation for the patients. The National center of excellence for CFS/ME does more harm than good.
The petition has now 2960 signatures
Another blog post from initiator Nina E. Steinkopf.
She writes about the harm the competence service causes patients when they include research and diagnostic criteria beyond ME.
Kompetansetjenesten skader ME-pasienter
google translation: The Competence Service is harming ME patients
3598 have signed the petition by now.