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Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe.. Cullinan et al, 2021

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Mar 4, 2021.

  1. Andy

    Andy Committee Member

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    Full title: Perceptions of European ME/CFS Experts Concerning Knowledge and Understanding of ME/CFS among Primary Care Physicians in Europe: A Report from the European ME/CFS Research Network (EUROMENE)
    Open access, https://www.mdpi.com/1010-660X/57/3/208/htm
     
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    the problem is worse than that as it also applies to a lot of the so-called CFS/ME 'experts'.
     
  3. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    Some quotes from the paper:

    https://twitter.com/user/status/1367569237485760512


    2) “Serious concerns were expressed about GPs’ knowledge and understanding of ME/CFS, and, it was felt, about 60% of patients with ME/CFS went undiagnosed as a result.”

    3) “Disbelief, and misleading illness attributions, were perceived to be widespread, and the unavailability of specialist centres to which GPs could refer patients and seek advice and support was frequently commented upon.”

    4) “21 respondents (91%) strongly agreed that there should be more teaching about ME/CFS in undergraduate medical curricula.”

    5) “Psychiatric involvement in specialist care was widespread. ME/CFS was perceived to be seen as a functional or psychiatric disease in Austria and Finland, and in Belgium psychiatrists were involved in care.”
     
  4. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    It's interesting to get an overview of the different European countries:
    The situation in the Netherlands isn't adequately described - there is a decent 2018 report by the Health Council but an old guideline promoting GET and CBT is still in place. There has been an announcement that it will be updated and that the NICE guideline will be used as a starting point. More info here: https://www.zorginstituutnederland....sche-vermoeidheidssyndroom-op-meerjarenagenda
     

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