Kalliope
Senior Member (Voting Rights)
I don't think this article from yesterday has been shared yet on the forum? Nice to see coverage from Canada.
White Rock woman shares her struggle with "horrendous" fatigue
A report from the Myalgic Encephalomyelitis & Fibromyalgia Society of BC says that Canadian ME research is “essentially non-existent.”
“Research capacity is severely limited as very few scientists enter the field, choosing instead well-funded research areas,” the report states.
Frustrated with the lack of research funding the condition receives, Pauw said she contacted PAN to raise awareness about the disease, which affects approximately 70,000 people in British Columbia.
A challenge with raising awareness about the disease, Pauw said, is that the people affected by the condition have little energy to lobby government.
“Our population is probably the least energetic physically and mentally.
“It’s creating quite a challenge to do this. But I think if other people are aware of this… that would be my goal, to make one person aware of it. Hopefully, that person would be the government.”
White Rock woman shares her struggle with "horrendous" fatigue
A report from the Myalgic Encephalomyelitis & Fibromyalgia Society of BC says that Canadian ME research is “essentially non-existent.”
“Research capacity is severely limited as very few scientists enter the field, choosing instead well-funded research areas,” the report states.
Frustrated with the lack of research funding the condition receives, Pauw said she contacted PAN to raise awareness about the disease, which affects approximately 70,000 people in British Columbia.
A challenge with raising awareness about the disease, Pauw said, is that the people affected by the condition have little energy to lobby government.
“Our population is probably the least energetic physically and mentally.
“It’s creating quite a challenge to do this. But I think if other people are aware of this… that would be my goal, to make one person aware of it. Hopefully, that person would be the government.”