Office of National Statistics: Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: Updates

This looks like an interesting graph from the ONS (I think the labour survery) showing a massive increase in people who are economically inactive I would assume largely due to long covid
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Source for that chart is https://www.ons.gov.uk/employmentan...loyeetypes/bulletins/employmentintheuk/latest

Data for Jan to Mar 2020 (the first bar on the chart above), which is available by hovering over the original chart at the link above, shows 14,958 people as being long-term sick. The last bar on the chart shows 226,184 as being long-term sick.
 
Source for that chart is https://www.ons.gov.uk/employmentan...loyeetypes/bulletins/employmentintheuk/latest

Data for Jan to Mar 2020 (the first bar on the chart above), which is available by hovering over the original chart at the link above, shows 14,958 people as being long-term sick. The last bar on the chart shows 226,184 as being long-term sick.
Thanks Andy - I got the picture from the Guardian

The number growth is massive. One thing I wonder is if this is a massive rise in Long Covid and that a large number of people with long covid basically have ME what does that say about different triggers, genetics etc. Does it indicate something interesting in that do certain diseases lead increase likelihoods - after all many people would typically get viruses in a year.
 
Thanks Andy - I got the picture from the Guardian

The number growth is massive. One thing I wonder is if this is a massive rise in Long Covid and that a large number of people with long covid basically have ME what does that say about different triggers, genetics etc. Does it indicate something interesting in that do certain diseases lead increase likelihoods - after all many people would typically get viruses in a year.
For the most part surely it must just reflect the shear numbers of people infected within a relatively short amount of time?
 
For the most part surely it must just reflect the shear numbers of people infected within a relatively short amount of time?


The figures could just suggest that but with the numbers going up for those who have been ill for more than a year I was wondering what that would say about ME (assuming the symptoms are the same). I think the economic inactivity does suggest an expectation of long term illness. The figures @Lucibee quotes in a tweet above suggest around 750,000 who have been ill for over 1 year. If the ME prevelance is 250,000 (which I don't think is an accurate figure) then the numbers with long covid are massive in comparison. I guess if even a small proportion stay ill for a long time with ME like symptoms that still feels like a large number in comparison to ME prevelance - hence my question does it indicate something.
 
Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 6 May 2022

1. Main points
  • An estimated 1.8 million people living in private households in the UK (2.8% of the population) were experiencing self-reported long COVID (symptoms persisting for more than four weeks after the first suspected coronavirus (COVID-19) infection that were not explained by something else) as of 3 April 2022 (see Figure 1).

  • Of people with self-reported long COVID, 382,000 (21%) first had (or suspected they had) COVID-19 less than 12 weeks previously, 1.3 million people (73%) at least 12 weeks previously, 791,000 (44%) at least one year previously and 235,000 (13%) at least two years previously.

  • Of people with self-reported long COVID, 556,000 (31%) first had (or suspected they had) COVID-19 before Alpha became the main variant; this figure was 249,000 (14%) in the Alpha period, 446,000 (25%) in the Delta period, and 438,000 (24%) in the Omicron period.

  • Long COVID symptoms adversely affected the day-to-day activities of 1.2 million people (67% of those with self-reported long COVID), with 346,000 (19%) reporting that their ability to undertake their day-to-day activities had been "limited a lot".

  • Fatigue continued to be the most common symptom reported as part of individuals' experience of long COVID (51% of those with self-reported long COVID), followed by shortness of breath (33%), loss of sense of smell (26%), and difficulty concentrating (23%).

  • As a proportion of the UK population, prevalence of self-reported long COVID was greatest in people aged 35 to 49 years, females, people living in more deprived areas, those working in social care, teaching and education or health care, and those with another activity-limiting health condition or disability.

  • The estimates presented in this analysis relate to self-reported long COVID, as experienced by study participants who responded to a representative survey, rather than clinically diagnosed ongoing symptomatic COVID-19 or post-COVID-19 syndrome in the full population.
https://www.ons.gov.uk/peoplepopula...ngcoronaviruscovid19infectionintheuk/6may2022

 
Of people with self-reported long COVID, 382,000 (21%) first had (or suspected they had) COVID-19 less than 12 weeks previously, 1.3 million people (73%) at least 12 weeks previously, 791,000 (44%) at least one year previously and 235,000 (13%) at least two years previously.

It's really frightening that over a million people have had it for a year or longer. Typically, self-limiting post viral syndromes resolve before the year mark.

As a proportion of the UK population, prevalence of self-reported long COVID was greatest in people aged 35 to 49 years, females, people living in more deprived areas, those working in social care, teaching and education or health care, and those with another activity-limiting health condition or disability.

That sounds like a familiar story too. People who can't afford to rest; who can't rest adequately because they have young children or feel they can't let down clients and colleagues; or who were already vulnerable.
 
The new ONS report on Long Covid after Delta versus BA.1 versus BA.2 first infections for double and triple vaccinated people is depressing. Basically, for triple-vaccinated people roughly 8% reported LC 4-8 weeks after infection, no matter which variant (BA.2 is about 9%, BA.1 and Delta 8%). For BA.1, the booster dose didn't seem to make much difference, but for Delta they show 16% for double vaccinated with LC versus 8% for triple vaccinated. Might be something weird going on with that 16% though.

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But what really puzzles me is that the main survey results show 438,000 reporting LC from the Omicron period, which I believe would be Dec 20 to about Feb 20 (i.e. 4 weeks before the midpoint of the latest survey, which was Mar 20). During that time, according to the infection results from the survey, about 1/3 of the UK population was infected. So that's only 2% of those infected reporting LC, which is very different from the 8% for vaccinated first infections.

Maybe reinfections are less likely to cause LC (and about a 1/3 of those Omicron infections were reinfections), but that wouldn't explain the huge difference. The 8% is for those reporting symptoms from 4-8 weeks and the 2% is for roughly 4-13 weeks, so there could be some reduction because people are no longer reporting LC between 8 and 13 weeks, but that also wouldn't be enough to explain the difference.

Anyone understand this data better and can explain why these numbers seem so different?
 

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Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 1 June 2022

1. Main points
  • An estimated 2.0 million people living in private households in the UK (3.1% of the population) were experiencing self-reported long COVID (symptoms continuing for more than four weeks after the first suspected coronavirus (COVID-19) infection that were not explained by something else) as of 1 May 2022 (see Figure 1).

  • Of people with self-reported long COVID, 442,000 (22%) first had (or suspected they had) COVID-19 less than 12 weeks previously, 1.4 million people (72%) at least 12 weeks previously, 826,000 (42%) at least one year previously and 376,000 (19%) at least two years previously.

  • Of people with self-reported long COVID, 593,000 (30%) first had (or suspected they had) COVID-19 before Alpha became the main variant; this figure was 239,000 (12%) in the Alpha period, 427,000 (21%) in the Delta period, and 619,000 (31%) in the Omicron period.

  • Long COVID symptoms adversely affected the day-to-day activities of 1.4 million people (71% of those with self-reported long COVID), with 398,000 (20%) reporting that their ability to go about their day-to-day activities had been "limited a lot".

  • Fatigue continued to be the most common symptom reported as part of individuals' experience of long COVID (55% of those with self-reported long COVID), followed by shortness of breath (32%), a cough (23%), and muscle ache (23%).

  • As a proportion of the UK population, the prevalence of self-reported long COVID was greatest in people aged 35 to 69 years, females, people living in more deprived areas, those working in social care, teaching and education or health care, and those with another activity-limiting health condition or disability.

  • The estimates presented in this analysis relate to self-reported long COVID, as experienced by study participants who responded to a representative survey, rather than clinically diagnosed, ongoing symptomatic COVID-19 or post-COVID-19 syndrome in the full population.
https://www.ons.gov.uk/peoplepopula...gcoronaviruscovid19infectionintheuk/1june2022

Official Twitter thread
 
https://news.sky.com/story/covid-19...-office-for-national-statistics-says-12625155
COVID-19: Two million people in UK estimated to be suffering from long COVID, Office for National Statistics says

Fatigue continues to be the most common symptom - experienced by 55% of those with self-reported long COVID - followed by 32% with shortness of breath, 23% with a cough and 23% with muscle ache.



https://www.independent.co.uk/news/health/covid-cases-latest-coronavirus-figures-b2091640.html
UK long Covid cases hit record high of 2 million

More than 825,000 people living with long Covid for at least one year, according to Office for National Statistics


https://www.itv.com/news/2022-06-01...record-high-of-2-million-new-figures-estimate
Long Covid cases in UK rise to record high of two million, new figures estimate

A record two million people in the UK are estimated to be suffering from long Covid, according to new figures.
Of the two million, 1.4 million said they first had Covid-19 - or suspected they had the virus - at least 12 weeks previously, while 826,000 first had the virus at least a year earlier.
A further 376,000 said they first had Covid-19 at least two years previously.



https://inews.co.uk/news/long-covid-uk-record-number-suffering-symptoms-ons-figures-1662015

https://www.thetimes.co.uk/article/record-two-million-people-in-the-uk-have-long-covid-mw7z2nlp8

https://metro.co.uk/2022/06/01/long...uffering-long-term-from-coronavirus-16747965/

https://www.theguardian.com/world/2...ople-in-uk-living-with-long-covid-say-studies

https://medicalxpress.com/news/2022-06-million-covid-uk.html

https://www.newscientist.com/articl...ecord-2-million-people-in-uk-have-long-covid/

https://www.standard.co.uk/news/uk/long-covid-how-many-uk-ons-latest-figures-pandemic-b1003599.html
 
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Moved post

Record two million people in the UK have long Covid

The Times, London 02/06/2022

(Paywalled)
https://www.thetimes.co.uk/article/record-two-million-people-in-the-uk-have-long-covid-mw7z2nlp8

More than 826,000 people have been suffering with long Covid for at least a year, according to the ONS, and a further 1.4 million still have symptoms at least three months after their initial infection. The most common symptom was fatigue, which was reported by more than half of people with long Covid, followed by shortness of breath, a cough and muscle aches. One in five of those who have long Covid reported that their ability to undertake their day-to-day activities had been “limited a lot” by their symptoms. Some patients were so weak they reported being unable to work or even walk a few steps. About 71 per cent — 1.4 million people in total — said the symptoms had some adverse impact on their ability to participate in day-to-day activities.

Behind the story
With 3 per cent of all adults in England reporting lingering and often debilitating symptoms, the problem of long Covid can no longer be ignored. Symptoms vary in severity, but some of those worst affected have had to give up their jobs and social lives. Although some experts were initially sceptical of long Covid, there is mounting evidence that the virus can cause long-term physiological changes. Some people with long Covid only had a mild initial infection, but find themselves bedbound months later. Others could be severely ill in hospital and then experience a different set of lingering symptoms. The World Health Organisation classes long Covid as “symptoms that last for at least two months and cannot be explained by an alternative diagnosis”.

Because of the wide range of symptoms, experts believe there are different underlying mechanisms causing long Covid, which vary from patient to patient. Research shows that Covid can cause the formation of tiny blood clots, known as microclotting, which means that cells in the body do not get enough oxygen. This leads to debilitating symptoms and fatigue. It is also thought long Covid may be linked to an overreaction in the immune system, which causes the body to attack its own organs, leading to permanent damage. The only way to avoid long Covid is not to get infected in the first place, but vaccination also reduces the risk of long-term symptoms. Trials are under way of potential treatments, including anti-inflammatory drugs and anti-clotting medication. Patients with long Covid are advised to contact their GP as a first port of call, who may then refer them to specialists clinics set up by the NHS.
 
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Letter in The Times, London 02/06/2022.

LONG COVID THREAT
Sir, I read your report that long Covid cases had passed the grim milestone of two million ( times.co.uk, Jun 1). That’s two million people living with often debilitating and unpredictable symptoms like persistent breathlessness, coughs and chronic fatigue. Many have been forced to put their lives on pause — some have quit their jobs and much-loved hobbies, others have been left bed-bound by this horrible condition. Covid-19 restrictions may have eased but the long-term effects of the virus are not going away. In fact, the latest Office for National Statistics data shows the problem is getting worse. Many people are in crisis and turning to charities like Asthma + Lung UK to get the support they desperately need. This problem is not going to go away unless there is urgent investment into new treatments for long Covid to help people get their lives back on track.
Dr Samantha Walker
Director of research and innovation, Asthma + Lung
 
Science Media Centre (UK) : Expert reaction to latest ONS data on prevalence of ongoing symptoms following COVID-19 infection in the UK: 1 June 2022 |

https://www.sciencemediacentre.org/...ing-covid-19-infection-in-the-uk-1-june-2022/

One expert opinion only and that is by David Strain.
“There are currently several different theories as to the underlying cause of the symptoms. These range from residual virus “hiding” in tissues that the immune system cannot easily get to, such as the brain or the gut. This then causes a slow release of chronic inflammation making people feel constantly debilitated. Other theories include an autoimmune reaction, where the body continues to fight itself once it is done fighting the virus; permanent damage done to the mitochondria (The powerhouse off each individual cell), or changes in our immune responsiveness to every day environmental bacteria and viruses.

“There is much yet to learn about this disease, in no small part because previous research into post viral fatigue syndromes, such as myalgic encephalomyelitis (ME, sometimes known as chronic fatigue syndrome) is far from complete, indeed in some settings woefully inadequate.
The SMC published this. Probably through gritted teeth and much confusion. Ironic as the CEO writes about the opposite and calls us Nazis for... saying the same thing.
 
An interesting point from the latest report is that 37,000 more people reported Long Covid on May 1 versus April 3 who first had Covid in the pre-Alpha period. So that's 37,000 people who probably are now reporting LC after a recent Omicron re-infection (181,000 more reported LC after a first Omicron infection). So we'll need to wait for an ONS analysis to know specifics, but it certainly doesn't look like LC after re-infection is rare, especially since re-infections weren't that large of a proportion of total BA.1 infections according to ONS data.
 
Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 7 July 2022

1.Main points
  • An estimated 2.0 million people living in private households in the UK (3.0% of the population) were experiencing self-reported long COVID (symptoms continuing for more than four weeks after the first suspected coronavirus (COVID-19) infection that were not explained by something else) as of 4 June 2022 (see Figure 1).

  • Of people with self-reported long COVID, 405,000 (21%) first had (or suspected they had) COVID-19 less than 12 weeks previously, 1.4 million people (74%) at least 12 weeks previously, 807,000 (41%) at least one year previously and 403,000 (21%) at least two years previously.

  • Of people with self-reported long COVID, 570,000 (29%) first had (or suspected they had) COVID-19 before Alpha became the main variant; this figure was 237,000 (12%) in the Alpha period, 394,000 (20%) in the Delta period, and 642,000 (33%) in the Omicron period.

  • Long COVID symptoms adversely affected the day-to-day activities of 1.4 million people (72% of those with self-reported long COVID), with 409,000 (21%) reporting that their ability to undertake their day-to-day activities had been "limited a lot".

  • Fatigue continued to be the most common symptom reported as part of individuals' experience of long COVID (56% of those with self-reported long COVID), followed by shortness of breath (31%), loss of smell (22%), and muscle ache (21%).

  • As a proportion of the UK population, the prevalence of self-reported long COVID was greatest in people aged 35 to 69 years, females, people living in more deprived areas, those working in social care, health care, or teaching and education, and those with another activity-limiting health condition or disability.

  • The estimates presented in this analysis relate to self-reported long COVID, as experienced by study participants who responded to a representative survey, rather than clinically diagnosed ongoing symptomatic COVID-19 or post-COVID-19 syndrome in the full population.
https://www.ons.gov.uk/peoplepopula...gcoronaviruscovid19infectionintheuk/7july2022

 
Self-reported long COVID after infection with the Omicron variant in the UK: 18 July 2022

1.Main points
  • Of triple-vaccinated adults, 4.5%, 4.2% and 5.0% self-reported having long COVID 12 to 16 weeks after a first laboratory-confirmed coronavirus (COVID-19) infection compatible with the Omicron BA.1, Omicron BA.2 or Delta variants, respectively, using data to 27 May 2022.

  • There was no statistical evidence of differences in the odds of reporting long COVID between infections compatible with the Omicron BA.1, Omicron BA.2 and Delta variants among adults who were triple vaccinated when infected; this was after statistically adjusting for socio-demographic characteristics for all comparisons, and for time since last vaccine dose when comparing Omicron BA.1 and BA.2.

  • Of double-vaccinated adults, 4.0% self-reported long COVID 12 to 16 weeks after a first infection compatible with the Omicron BA.1 variant, compared with 9.2% for those compatible with the Delta variant.

  • The odds of reporting long COVID were 48.2% lower for first COVID-19 infections compatible with the Omicron BA.1 variant than those compatible with the Delta variant among adults who were double vaccinated when infected; this was after statistically adjusting for socio-demographic characteristics.
https://www.ons.gov.uk/peoplepopula...fterinfectionwiththeomicronvariant/18july2022

 
Prevalence of ongoing symptoms following coronavirus (COVID-19) infection in the UK: 4 August 2022

1.Main points
  • An estimated 1.8 million people living in private households in the UK (2.8% of the population) were experiencing self-reported long COVID (symptoms continuing for more than four weeks after the first suspected coronavirus (COVID-19) infection that were not explained by something else) as of 2 July 2022 (see Figure 1).

  • Of people with self-reported long COVID, 243,000 (14%) first had (or suspected they had) COVID-19 less than 12 weeks previously, 1.4 million people (81%) at least 12 weeks previously, 761,000 (43%) at least one year previously, and 380,000 (21%) at least two years previously.

  • Of people with self-reported long COVID, 530,000 (30%) first had (or suspected they had) COVID-19 before Alpha became the main variant; this figure was 221,000 (12%) in the Alpha period, 356,000 (20%) in the Delta period, and 586,000 (33%) in the Omicron period.

  • Long COVID symptoms adversely affected the day-to-day activities of 1.3 million people (72% of those with self-reported long COVID), with 369,000 (21%) reporting that their ability to undertake their day-to-day activities had been "limited a lot".

  • Fatigue continued to be the most common symptom reported as part of individuals' experience of long COVID (54% of those with self-reported long COVID), followed by shortness of breath (31%), loss of smell (23%) and muscle ache (22%).

  • As a proportion of the UK population, the prevalence of self-reported long COVID was greatest in people aged 35 to 69 years, females, people living in more deprived areas, those working in social care, those aged 16 years or over who were not students or retired and who were not in or looking for paid work, and those with another activity-limiting health condition or disability.

  • The estimates presented in this analysis relate to self-reported long COVID, as experienced by study participants who responded to a representative survey, rather than clinically diagnosed ongoing symptomatic COVID-19 or post-COVID-19 syndrome in the full population.
https://www.ons.gov.uk/peoplepopula...oronaviruscovid19infectionintheuk/4august2022

 
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