Northern Ireland: News from Hope 4 ME & Fibro

https://www.eventbrite.co.uk/e/shap...ollaboration-for-change-tickets-1981417418838

Shaping The Future for M.E. & Long Covid - Collaboration for Change

By Hope 4 ME & Fibro N. Ireland
Mourne Country Hotel
Mar 27 from 7pm to 9pm GMT

From £11.55
Mar 27 · 7:00 PM GMT

Overview

A unique opportunity to hear from the real experts with evidence,
education and practical strategies for better care and policy.


Join Us!

This conference brings together leading U.K. clinicians, researchers,
and advocates to explore the latest evidence on Myalgic
Encephalomyelitis (M.E.) and Long Covid. It highlights the importance
of early, accurate diagnosis, patient safety, and translating research
into practical, effective clinical pathways.

Designed for healthcare professionals, commissioners, policymakers,
and the wider community, who value safe care approaches, and
evidence-based service planning.


Why This Matters:

For people with M.E. and Long Covid, early understanding and
appropriate care can greatly improve quality of life and long-term
wellbeing. Delayed or misaligned care can worsen illness, cause harm,
and place strain on both patients and services.


" Covid is new but the phenomenon of viruses causing long-term
disability, is not new." Professor Deepa Mann-Kler , Director &
Producer of 'Discover M.E.' film.

FREE- M.E. Webinar For Healthcare Providers Only:

Check out General Practice Northern Ireland (GPNI) 1-hour M.E.
Webinar. Now available to all healthcare professionals outside of
Northern Ireland.
https://tinyurl.com/ME-Webinar

Category: Health, Medical

Good to know

Highlights

2 hours
In person
Free parking
Doors at 6:30 PM

Refund Policy

No refunds

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Information on UK expert speakers:

-Professor Chris Ponting – Professor of Medical Bioinformatics, University of Edinburgh; Principal Investigator of DecodeME (genetics of M.E.)

-Professor Trinick – Consultant Physician; NHS clinical leadership and complex post-viral conditions, including M.E., Fibromyalgia and Long Covid

-Dr William Weir – Consultant Physician; specialist in Myalgic Encephalomyelitis (M.E.)

-Dr Binita Kane – Consultant Respiratory Physician; advocate for M.E. and Long Covid, with research and policy expertise.
 
From Facebook:

Now available: The Newry conference on 27th March 2026 had now been added to our YouTube Channel.

This event brought together leading voices across research, clinical care and lived experience — including Professor Chris Ponting, who explored emerging insights from genetics and biomedical research; Dr William Weir, sharing decades of clinical experience in M.E.; Professor Tom Trinick, (Dr. Binita Kane remaining private for now)

Together, these perspectives created an honest and constructive conversation about where we are — and where we urgently need to go next.

If you couldn’t join us on the day, or would like to revisit the discussions, you can now watch the sessions or other events we’ve hosted at your own pace.

We hope these recordings help continue the momentum — raising awareness, improving understanding, and supporting better, safer care in Northern Ireland.

Thank you to everyone who contributed, attended, and continues to push for change

#MEAwareness #LongCovid #CollaborationForChange

Thank you Alpha Video Ireland

 
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