NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

Andy

Andy

Senior Member (Voting rights)
Goal: Present high-quality science studies of ME/CFS to better understand the state of the science and help drive the field forward by identifying gaps and opportunities. Presentations should emphasize newer work or in some cases critical previous work that fits with current models of ME/CFS.

Audience is expected to be scientists, clinicians, patients and other ME/CFS stakeholders. Conference will be webcast and publicly available.
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http://palladianpartners.cvent.com/.../agenda-2e5f90defaa4406e8fce234835e11fdf.aspx
 
FYI, it is possible to register as a "remote participant" (may not be exactly that wording), as opposed to "in-person". I've done so in order to, hopefully, receive updates of when the videocast is available, but I don't think it would be a bad thing for the level of interest to be shown by the number who sign up that way.
 
Andy said:
FYI, it is possible to register as a "remote participant" (may not be exactly that wording), as opposed to "in-person". I've done so in order to, hopefully, receive updates of when the videocast is available, but I don't think it would be a bad thing for the level of interest to be shown by the number who sign up that way.
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That's a good idea! Will do the same.
 
Andy said:
FYI, it is possible to register as a "remote participant" (may not be exactly that wording), as opposed to "in-person". I've done so in order to, hopefully, receive updates of when the videocast is available, but I don't think it would be a bad thing for the level of interest to be shown by the number who sign up that way.
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I just had a look at that and I see that the list of attendees is online. I don't know if that's everybody, but not everyone may be happy to be listed.
 
Sasha said:
I just had a look at that and I see that the list of attendees is online. I don't know if that's everybody, but not everyone may be happy to be listed.
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True but all they display is name, company and title. While first and last name are required, there is nothing to say that you can adopt a pseudonym, and company and title aren't required fields to complete.
 
wigglethemouse said:
It does look an impressive speaker list. I hope they get a good attendance from NIH staffers

I'm a bit surprised that the UK ME/CFS Biobank team are not on the list as they have received significant NIH funding 2013-2021 $500K+ a year
https://projectreporter.nih.gov/project_info_history.cfm?aid=9272477&icde=31258613

Anyone hear if they are invited to participate even if not presenting?
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At a guess they weren't invited? There are a number of people who look to have been invited but, presumably, not confirmed yet - given that Luis Nacul is going all the way to Australia for the Emerge conference it's not like they are shy about travelling so my assumption is that if they had been asked they would have gone.
 
For those who’ve haven’t checked the agenda since it was originally posted in January it’s grown in speakers, talks, and topics and now the conference is two full days. If I remember correctly the original agenda was 1 1/2 days.

Will anyone else on S4ME be there in person? Would be nice to meet users.
 
Good afternoon remote attendees,

Information on how to view the Accelerating Research on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) Meeting, remotely is now available on the meeting registration website. The meeting will take place on April 4-5, 2019 on NIH Main Campus in Bethesda, MD.

Please note that the meeting archive will be available on the NIH Videocast website approximately a week following the close of the meeting and then available to view forever.

Please click here to view the Meeting Information & Remote Attendance tab.
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