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NICE Guideline Committee Register of Interests, 9 April 2019

Discussion in 'Information for NICE guidelines' started by Sarah, Apr 9, 2019.

  1. strategist

    strategist Senior Member (Voting Rights)

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    NICE needs to do something about FII. It seems to be totally out of control. Serious error in the system.

    The unusual patterns of healthcare utilization, school attendance, investigation and so on are not unusual, they are often the norm in ME/CFS. Declining GET for one's child is not abuse.
     
  2. Amw66

    Amw66 Senior Member (Voting Rights)

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    Sadly
     
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  3. Trish

    Trish Moderator Staff Member

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    Speaking as an individual, not with my committee hat on, I am very concerned about this and think it is worth a polite letter to the committee chair and whoever else deals with this.
     
  4. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    In January, Helen Finn, Communications Manager for NICE replied to a letter we had sent re the composition of the Committee in the following terms.

    “As a result of concerns raised with the appointments made so far we have reviewed the appointments and we consider that they are appropriate and that any interests that the committee members have declared can be managed using our policy on declaring and managing interests for NICE advisory committees.”

    Nice’s COI policy below. ( not yet read but presumably it informs the decisions they have made).

    https://www.nice.org.uk/Media/Defau...rocedures/declaration-of-interests-policy.pdf

    S4ME thread https://www.s4me.info/threads/nice-...s-now-been-published.6197/page-37#post-137054
     
  5. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Don't worry, I've already sent a link to the chair.
     
  6. Trish

    Trish Moderator Staff Member

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    Do you mean a link to this thread?
     
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  7. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Yes.
     
  8. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    LOcalME have drafted a stage 3 complaint to the Ombudsman - not yet sent ( my fault...)
     
  9. Binkie4

    Binkie4 Senior Member (Voting Rights)

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    @Suffolkres - thanks. What is a stage 3 complaint?
     
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  10. Suffolkres

    Suffolkres Senior Member (Voting Rights)

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    Stage 1 and Stage 2 with NICE, then the Ombudsman next if we were not happy and not accepting NICE responses.
     
    Last edited: Apr 12, 2019

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