Jesse
Senior Member (Voting Rights)
Thanks for sharing. Me and my parents have been trying to look into this as well, together with the municipality.
Here’s a revised and clearly structured version of your text, with bolded key points and paragraph breaks for better readability:
“So you're going to let me die...?”
Who’s going to help Sanne?
Sign this petition: https://ap.lc/hgZuc
(Note: "Woonplaats" = place of residence. You’ll receive an email to confirm your signature.)
The Dutch ME community has been shaken by a very urgent situation.
Sanne van Enckevort, a 38-year-old woman from Hegelsom, is seriously ill due to ME. She also suffers from gastroparesis, meaning her stomach can barely process food. Her weight has dropped rapidly — from 70 to 48 kilos.
She cannot tolerate tube feeding. Despite many attempts, she can only consume 240 kcal per day. IV fluids are barely keeping her alive.
TPN is a life-saving, standard treatment — nutrition administered directly into the bloodstream.
Doctors in Maastricht recognized that tube feeding was not viable and referred Sanne to Radboudumc (Nijmegen) to start TPN.
But at Radboudumc, the specialist team refused treatment.
Reason: Sanne has ME. The doctor reportedly stated that ME patients do not receive TPN, no matter how severe their condition.
When Sanne pleaded through tears, “So you're going to let me die?”, she received no answer.
This Is Not an Isolated Case
There are similar tragic cases in the United Kingdom:
Maeve Boothby O'Neill, died in 2021 from untreated malnutrition after TPN was refused.
Karen Gordon, still alive, has been receiving TPN in hospital for 1.5 years. Access to home care has been denied, and attempts have been made to discontinue her care.
This reflects a pattern of systemic medical neglect toward ME patients.
Her body is breaking down:
Sanne is not asking for a cure. She is asking for equal medical care: TPN, just like others with intestinal failure receive.
- She faints after taking a few steps to the toilet
- Her hair is falling out
- She is completely bedridden
- She is dependent on her partner and caregivers
- Her doctor is powerless to help
A team of doctors and lawyers is now working on Sanne’s case. The media has also been approached.
Without TPN, she faces:
Doctors mention the risks of TPN, but the greater risk is not treating her at all.
- Muscle breakdown
- A weakened immune system
- Organ damage
- And ultimately, death from malnutrition
This is not just Sanne's fight — it's about a wider pattern of medical discrimination and neglect.
Share this story.
Raise awareness.
Apply pressure so Sanne and others are not left to die.
Sanne does not want to die — she wants to live.
Sign the petition now: https://ap.lc/hgZuc
Dutch patient is dying of starvation but medical professionals deny life-saving treatment.
@Jonathan Edwards is there anything you could do?