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News from South Africa

Discussion in 'Regional News' started by Andy, Jan 22, 2018.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

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    A thread for news from South Africa

    https://www.afrika-news.com/interview-cfs-foundation-founder/
     
    Last edited by a moderator: Apr 22, 2021
    andypants, Hutan, rvallee and 15 others like this.
  2. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    As well as being in Unrest Retha was also in the Carte Blanche piece:
     
  3. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Second part of the interview.
    https://www.afrika-news.com/part-2-interview-retha-viviers-founder-cfs-foundation/
     
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Retha Viviers on living with ME



    @Retha Viviers


    edit: re trishes comment below
    I had the same problems and found a couple of Rethas other videos but they appear to use the same graphics.
     
    Last edited: Dec 8, 2018
    adambeyoncelowe, MEMarge and Andy like this.
  5. Trish

    Trish Moderator Staff Member

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    I have just watched this, or rather listened to it. It is a 6 minute video in which you hear the voice of Retha Viviers talking about what her life is like living with ME, including the need to be able to rest when she needs to and the effects of brain fog both on what she can do and her sense of self worth. I thought the spoken part was very good.

    But after about a minute of watching the fast flickering images of pictures being drawn on the screen I had to close my eyes. For the rest of the 6 minutes my eyes went on flickering horribly. Not a nice experience. And then there was piano music going on as well at the same time as the speech.

    For a healthy person, it's probably no problem coping with these multiple sensory inputs, and I guess the video is designed to educate healthy people, so it's probably fine, but for pwME like me, it's really problematic.

    Edit - I've just realised @Retha Viviers is a member of this forum. I hope you don't feel too bad about my comment. As I said, I think the spoken part is very good, and for healthy people the whole thing is probably fine.
     
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  6. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Post copied from Possibility of ME or PVFS after COVID-19, Long Covid

    'Long Covid is a post-viral fatigue syndrome also seen after swine and bird flu'

    https://www.capetalk.co.za/articles...e-syndrome-also-seen-after-swine-and-bird-flu

    eta: there are several threads on South Africa, click on tag 'south africa'.
     
    Last edited: Apr 22, 2021
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  8. Wyva

    Wyva Senior Member (Voting Rights)

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    Do you think you have Chronic Fatigue Syndrome? Here's what you need to do

    There's an entire podcast with a South African doctor about ME/CFS, which I unfortunately can't listen to right now due to PEM. But it looks good.


    "Pippa Hudson talks to Cape Town medical doctor Elizabeth Murray, who specialises in the management of post-viral fatigue syndromes.

    She says decades after it was described as a syndrome, people suffering from ME or CFS continue to struggle to have their condition taken seriously even now.

    I only know about it because I got it, no teaching in medical school. Patients are told to go to a psychiatrist or even worse, they are told they are malingering.

    Dr Elizabeth Murray, Medical Practitioner
    Why do many doctors seem unwilling to buy into the diagnosis?

    Doctors don't like to say 'I don't know', and we don't know a lot about it. But we do know how to manage it.

    Dr Elizabeth Murray, Medical Practitioner"​

    https://www.capetalk.co.za/articles...c-fatigue-syndrome-here-s-what-you-need-to-do
     

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