Ravn
Senior Member (Voting Rights)
Some (potentially) good news from Denmark (google translated)
B.T. (27/10/23) Parents of a seriously ill daughter rejoice: Now the minister will finally look at the controversial disease
B.T. (2/11/23) Millions on the way to controversial disease: 'It's a big breakthrough, but we can't relax yet'
B.T. (27/10/23) Parents of a seriously ill daughter rejoice: Now the minister will finally look at the controversial disease
In 2019, when Esben and Vibeke Gustavussen last celebrated, a unanimous Danish Parliament passed the proposal V82.
A proposal that would improve the conditions for the country's ME/CFS patients by, among other things, separating the disease from the collective term 'functional disorders', so that the patients could receive a different treatment.
But the parliamentary resolution ran into the sand. Nothing happened, while their daughter, and the country's many other ME/CFS patients, only got worse, the parents say.
The Minister of Health is actively involved in the matter
There is thus hope again on Friday. The Ministry of Health informs B.T. on Friday that they will now spend DKK 1.5 million to learn more about international research in the area.
https://www.bt.dk/samfund/foraeldre...tter-jubler-nu-vil-minister-endelig-kigge-paathe Ministry of Health stated in the written response to B.T. that the knowledge review of the current evidence in the ME/CFS area will be carried out by an external supplier, who has not yet been appointed, however.
B.T. (2/11/23) Millions on the way to controversial disease: 'It's a big breakthrough, but we can't relax yet'
https://www.bt.dk/samfund/millionbe...-sygdom-det-er-et-stort-gennembrud-men-vi-kanHowever, you can't relax yet, says Peder Hvelplund [health spokesperson for the party Enhedslisten]:
"Now we have to maintain the pressure so that we get the big breakthrough. Those who have been in despair have been given hope that improvements will come. We have to push for that so that they get it.'
This will be done, among other things, in the coming time, when Hvelplund has called the Minister of Health, Sophie Løhde, into consultation on the ME/CFS case. A consultation that has so far been postponed, but is expected to develop during November.
"What is crucial for us is that the review of the international research is not anchored by the Danish Health Authority and the Center for Functional Disorders, where the efforts have been until now. It is absolutely crucial that it be impartial experts,' he says