News from Scandinavia

More about Wikström & Malmquist's NFT business World of Alidia:

Vanja Wikström: Framtiden för World of Alidia
https://vanjawikstrom.motherhood.se/world-of-alidia/framtiden-for-world-of-alidia/

Vanja Wikströms NFT-projekt World of Alidia sålde livslånga medlemskap – lägger ner efter ett år: ”Jag är själv besviken”
https://www.breakit.se/artikel/3738...lagger-ner-efter-ett-ar-jag-ar-sjalv-besviken
breakit.se auto-translate said:
Vanja Wikström's NFT project World of Alidia sold lifetime memberships - closes down after one year: "I am disappointed myself"

Vanja Wikström and her partner Niklas Malmqvist sold NFTs to women and beginners for thousands of euros and promised with their World of Alidia a lifelong membership with networks, events and a yoga room.
But after less than a year and a half, World of Alidia is closing down.

The founding couple point to the NFT crash and say they simply couldn't make the high-flying venture work and the buyers' money - around £3 million - has run out. [...]

In 2022, World of Alidia had a turnover of SEK 2.6 million and made a profit after financial items of almost SEK 400,000. [...]
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Bloggbevakning: Brief om Vanja Wikströms ”World of Alidia”
https://nyheter24.se/bloggbevakning/2023/08/21/brief-om-vanja-wickstroms-world-of-alidia/
 
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@MittEremltage's latest blog article :thumbsup:

Om att sälja hopp
https://mitteremitage.wordpress.com/2023/08/21/om-att-salja-hopp/
mitteremitage auto-translate said:
On Selling Hope

"- We think we can eventually turn over quite a lot of money, and the goal is to have one or more researchers employed full-time. It's a way of trying to help both ourselves and others."
- Vanja Wikström, Expressen, 15 June 2022

[...] I can't help but wonder how many ME sufferers were actually tempted to invest their money in World of Alidia, perhaps not primarily for their own benefit but in the hope of more money for [ME] research, in the hope of those full-time [ME] researchers finally cracking the code. In the hope of a healthy life. Because as absurd as it sounds, it is donations from private individuals that drive ME research forward. Other research funding is almost non-existent. As a result, many ME sufferers spend a large part of their limited capacity and finances (most are too ill to work) on generating money for ME research in various ways. Because they are desperate for someone to find a solution.

When you read Vanja's blog, it is clear that these people, sick with ME, were also among WoA's intended investors.
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Do click through and read the whole article, here's the Google Translated version. Includes an update on medagboken's attempts to find facts and answers.
 
One more thing about Vanja Wikström & Niklas Malmquist's business plans.

In a reply to medagboken on Instagram, Vanja writes:
vanja_wikstrom auto-translate said:
10% of WoA's royalties [SEK 500, approx 41 Euro or 35 GBP - mango] were donated to the Brain Foundation. Unfortunately a much smaller amount than we had hoped to contribute as we did not manage to lift the project. But we will continue to actively support ME research and hope to contribute more in the future in the other things we do. For example, we are considering trying to arrange a translation of the brain retraining programme as it has helped Niklas a lot. But we know that many people find it difficult to absorb it as 99% of the material is in English.
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The brain training programme seems to be a variation on DNRS called I Can Thrive, but he has recommended other similar programs too such as Gupta. Here's a link to some DNRS related posts on Vanja's blog.

On 12 September 2022 she wrote that Niklas is starting DNRS. But on 29 November 2022 she wrote that Niklas is feeling much better since starting a low histamine diet, and that he hasn't yet started doing DNRS "for real".

Here's a post by Niklas on Instagram on 18 January 2023, saying that he didn't continue to do DNRS because he felt so much better thanks to the low histamine diet. But the improvement he experienced was only temporary. He then started a different DNRS based brain retraining program called "I Can Thrive" which he says has been modified specifically to treat ME.

He says the I Can Thrive program aims to convince the body and the consciousness that "you don't need to be ill any longer", and to put the body into a state of calm and relaxation where it can heal (to get out of the fight or flight state that they believe the bodymind has gotten stuck in). He talks about standing on different pieces of paper and doing certain kind of movements (he kind of compares it to learning the choreography of a dance). He mentions placebo as a way to "switch on" the healing process in the body.

The I Can Thrive programme apparently costs around 18 000 SEK? (approx 1500 EUR, 1290 GBP)

26 February 2023 Another update by Niklas where he talks about the theory behind the I Can Thrive. He says that reacting strongly in a negative way to symptoms creates more and worse symptoms. He believes that if you have a lot of fears, worry, anxiety, hopelessness, panic and depressive thoughts about your symptoms, these kinds of programs are likey to really help. (Really?? Sounds to me like these programs are blaming very ill individuals for making themselves iller by having negative reactions/feelings/thoughts about their symptoms, and expecting them to suppress and ignore them. How is that helpful?)

4 June 2023: "Of course, I'm not healthy yet, but I feel like I'm heading in the right direction. It will take time and it will be hard. I will have crashes, but I know that every crash takes me one step closer to a full recovery. It just has to happen!"

:nailbiting:

In a recent Instagram post from 4 August 2023 Niklas says that he has started the recovery process, is feeling better and is able to be much more active, but there are ups and downs. In the caption he writes "What I don't think you should listen to is when some doctors say that ME is an incurable disease.", and is his talk he says that "it's a lie". Addressing newly diagnosed pwME, he says don't listen to the doctors, they don't know how to treat this illness, and they tell you that if you exercise you will get worse etc, and listening to the doctors only "stresses your nervous system and harms more than it helps". He emphasizes over and over that there are ways to recover from ME. He encourages them to instead watch YouTube videos by people who have recovered, and follow their advice. And stresses that believing in the possibility of recovery is absolutely fundamental to these programs.

:rolleyes:

Talking about the I Can Thrive method, he says it's very expensive but you get a personal guide that you have one-on-ones with regularly. Talking about overcoming his gluten intolerance, he describes the method as putting yourself in an emotionally charged state and visualizing yourself eating gluten and that it's really good for your body. Two weeks later he was able to eat gluten again, and this made him believe in the method.

:banghead:
 
En RIKTIG insamling till ME
https://woaholder.wordpress.com/2023/08/21/en-riktig-insamling-till-me/

In memory of woa
In support of Open Medicine Foundation
https://openmedicinefoundation.crowdchange.co/33932

openmedicinefoundation.crowdchange.co said:
Since Niklas and Vanja only donated 500 SEK to ME research we are now trying to reach 5000 SEK with the help from former woa holders, friends on Flashback and followers to different social media accounts reviewing what was really done in the World of Alidia project.

The aim of the fundraiser is to give real support to ME research. We have asked what organisation is a good choice instead of Hjärnfonden who can't promise that the funds will go to ME research.

As always with an American organization there are fees and as I understand it 10% of the donations covers cost for the fundraiser.
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Mammabloggaren i kritikstorm efter skrotat kryptoprojekt
https://www.di.se/digital/mammabloggaren-i-kritikstorm-efter-skrotat-kryptoprojekt/

Paywalled. DI is one of Sweden's largest financial newspapers.
di.se auto-translate said:
Mummy blogger criticised after scrapping crypto project

Blogger Vanja Wikström wanted to build an international women-led community by selling digital assets, known as NFTs.

The decision to close the company World of Alidia instead is now being criticised.

"Having to convince people that you are not a rotten person is a strange situation, but I understand the disappointment", says Vanja Wikström.
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mango said:
Bloggbevakning: Brief om Vanja Wikströms ”World of Alidia”
https://nyheter24.se/bloggbevakning/2023/08/21/brief-om-vanja-wickstroms-world-of-alidia/
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I'm really fascinated by the way ME and pwME are being discussed in this context. I've never ever seen ME talked about in this way in Sweden before, and definitely not outside ME forums/groups. Very surprising, in a good way.

Some of the comments under the blog post linked above are a great example:
Auto-translate said:
Anonymous / 12:25

I am not particularly familiar with either the crypto world or the disease ME. But it seems a bit strange that Niklas was SO sick for so long and they sought sympathy for him who cannot work and for Vanja who pulls the load at home herself. Then when they manage to buy a house on Gotland (due to dubious business...?) So suddenly he suddenly feels better and can have a very nice and active summer.....

Reply

red tongue / 12:26

And there is speculation that the next project will be to try to teach ME sufferers how to get well. an important aspect of reviewing this: that there will be no new scams from the same couple....

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Sara / 12:42

Just what I fear. After having earned money partly because of ME via WOA, N & V now go on to swindle sick people and relatives on more money via brain programmes when N is suddenly healthy.

I have written comments on her blog but nothing gets through. I have not written rudely but questioned in a way where she should let the comment through.

This must be highlighted because Niklas and Vanja have used ME to make big money. I feel so sorry for everyone who "invested", I was close to doing it myself but my gut feeling said something else quite quickly. I felt that something was off and was not right and that I thought there was a little too much connection with ME. Today I am glad that I once again listened to my gut feeling.

Now I dread how much money V & N will make from ME sufferers and relatives with the translation of the brain programme. The next scam and unfortunately many will pay for it because N has a large following that is almost cult-like on his Instagram. You don't get healthy thinking about a house on Gotland? Feels like this was rather part of their money plan, unfortunately.

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Jan / 16:25

Really! And so frustrating that "old media" will not know about WoA because it was the tech pages that wrote about it and now it is the health gang that will write about the ME project. And everyone who does not read Flashback or here will think that here is a nice couple who wants to contribute.
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About the house. In one of his posts on Instagram, Niklas talked about visualizing himself healthy and happy in their new house on Gotland, and that being a big and important part of his recovery process. He said that "the closer to Gotland he got, the healthier he felt".
 
Influencerns kritiserade NFT-projekt läggs ner efter bara ett år
https://www.aftonbladet.se/nojesbla...erade-nft-projekt-laggs-ner-efter-bara-ett-ar

(Aftonbladet is one of the largest daily newspapers in the Nordic countries.)
Auto-translate said:
Influencer's criticised NFT project shut down after just one year

[...] Part of the goal of the World of Alidia project has also been to contribute money to research on ME/CFS, as Niklas Malmqvist himself is affected. Ten per cent of what the project received through royalties from second-hand sales would be donated to research. The goal was high. Eventually, the couple wanted to employ their own ME researcher.

- 'We thought we could really make a difference there, because other NFT projects were making so much money on the secondary market. But since the project didn't go well, the art wasn't sold much on the second-hand market and the possibility of receiving royalties disappeared, we didn't get much at all," says Vanja Wikström.

Donated 500 SEK

How much was it?

- We have been able to donate SEK 500. You might think that's really bad, but it's still SEK 500 and it's 10 per cent of the royalties we received. We are very sad that the project didn't go better and would have liked to give more, but this is how it turned out and it's at least better than 0 SEK.

On social media, the founders are saying that they do not want to answer questions about World of Alidia. This includes the fact that the couple bought and renovated a house on Gotland.
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SEK 500 is approx 41 Euro or 35 GBP. As already mentioned upthread, the money was allegedly donated to The Swedish Brain Foundation (Hjärnfonden), which doesn't even list ME as an option among the diseases available to earmark your donation for.
 
Swedish influencer Vanja Wikström and her pwME business partner/fiancé Niklas Malmquist are heavily promoting brain training as part of their business. @MittEremltage explains why this is unethical and problematic. :thumbsup:

Do click through and read the whole article, here's a Google Translate version (English).

Etiskt och vetenskapligt problematiskt
https://mitteremitage.wordpress.com/2023/08/24/etiskt-och-vetenskapligt-problematiskt/
Auto-translate said:
Ethically and scientifically problematic

[...] Ever since Niklas started brain training in September 2022, both he and Vanja have been talking about it repeatedly in their various channels. It is not something they have tried to keep to themselves, but they talk openly and in detail. And enthusiastically. I would say that this has been a strong contributing factor in maintaining the hype around brain training that has existed among ME and long COVID sufferers in recent years.

In mid-June this year, Niklas publishes a post on Instagram where he talks about "keys" to his improved well-being. He ends the post by writing:

"I'm obviously not healthy yet but I feel like I'm heading in the right direction. It will take time and it will be hard. I will crash, but I know that every crash takes me one step closer to full recovery, I just have to go!" (Niklas Malmqvist 14/6-23)

In a comment on the same post, he clarifies what he means:

"In most brain retraining I have participated in/read about, a crash (period with a lot of symptoms) is an opportunity to learn to calm the nervous system and not react so negatively to the symptoms. In the CFS Recovery programme (available on YouTube), they call crashes 'adjustment periods' and talk about the need to go through such a period (and at the same time calm the nervous system) so you can expand your activity next time. So that's how I look at my crashes. I don't get too excited and basically don't react to the symptoms at all, I just ride out. A big part of the change I've made in the last year is not being afraid and worried about my symptoms. For example, I never think that there is a risk that this symptom will never go away or that I won't come out of the crash."

Less than two months later, Niklas publishes two long films on his Instagram account where he continues to talk about feeling better but also says that he has recurring crashes. He says this is because he is currently testing the limits of what he can do but that he has "started his recovery back to a healthy life". The content of these films is deeply problematic. Especially when you know what brain training is all about. For those who are not familiar with this, I recommend that you take a look at my previous posts on the subject.

"I am very scientific, logical, or at least used to be. I relied very much on doctors. The doctors will tell you that this is an incurable disease, and that's actually a lie. It's a disease you can recover from. Many people have recovered from this disease. What they're really saying is that this is a disease that we doctors can't cure, you have to go somewhere else./.../If you're looking at this and you've just been diagnosed with ME or maybe you suspect that you have an ME diagnosis, you can absolutely go to a doctor or health centre that can help you get the diagnosis, but then it's important, I think, not to listen so much to what they say. Because they don't know how to treat these conditions. Because they say that this is an incurable disease and they say that if you exercise you will feel worse, and they say a lot of things that make your nervous system even more into looking for dangers. It really hurts more than it helps. So if you've just been diagnosed with ME, don't listen to it, but remember that there are ways to get well." (Niklas Malmqvist, 4/8-23)

Instead of listening to doctors, Niklas encourages ME sufferers to look at success stories, to believe that you can get better with the help of your brain, to visualise when you feel good and to think that what makes you sick is actually something that is good for you.
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Auto-translate said:
So what is so problematic about this? Well, my goodness, I hardly know where to start.

Firstly, doctors must work according to science and proven experience and have an obligation to maintain patient safety. Saying that ME sufferers should exercise and that the disease can be cured is unscientific and puts patients at risk.

Secondly, the doctors who say that ME is a chronic disease and give advice not to exercise tend to be those working in the rare specialist ME clinics. These are doctors who are knowledgeable about the disease, have insight into what research says about ME and have seen many patients over a long period of time. They have clinical experience of what happens over time with ME sufferers, which the majority of healthcare professionals in Sweden do not have. Most other doctors argue on the basis of ignorance like Niklas. They believe that ME can be cured with rehabilitation, usually in the form of counselling and gradually increased exercise.

We are so terribly many ME sufferers who have received incorrect and devastating prescriptions from the healthcare system to exercise. Who have been put into rehabilitation with the goal of recovery. Who have met doctors who did not tell us that there is no cure for ME and who, because of these misconceptions about the disease, have deteriorated significantly and permanently. We are many ME sufferers who share the experience that, contrary to what Niklas claims, with each crash you only get further and further away from the life we could live when we were healthy.

Thirdly, there is currently no evidence-based curative treatment for ME, either in terms of drugs or rehabilitation.

When it comes to rehabilitation with, for example, CBT, graded exercise therapy (GET) and the brain training programme LP, which Niklas himself says is close to what he is doing now, international guidelines such as NICE even advise against its use. [...]

Fourth, the evidence that ME patients' bodies react abnormally to exercise is robust. [...]

In fact, as recently as May last year in an interview with Aftonbladet Lifestyle, Niklas himself talked about exercise being harmful to people with ME and told how he felt "extremely bad" because of the incorrect advice on exercise the doctors gave him before he was diagnosed.

"You are often misdiagnosed and I was misdiagnosed in the beginning. I was diagnosed with fatigue. It became very problematic, because when you get that diagnosis together with the chronic insomnia diagnosis that I also had, the recommendations are to be physically active. You have to go out and run and move around. I tried to do everything I could to feel better, so I was out running even though I was feeling very bad. But this has a negative impact on the ME disease, so before I met the right doctor who could determine that I had ME, I did a lot of things wrong and felt extremely bad." (Niklas Malmqvist 12/5 2022)

But now, just over a year later, when he has started brain training, Niklas suddenly advises his followers not to listen to the ME doctors who made his own diagnosis. And he thinks that others should expose themselves to what made him feel so bad. It seems that during his brain training he has completely abandoned science and now lets loose speculation that ME is a brain dysfunction lead him forward.
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Auto-translate said:
Fifthly. Yes, there are people who recover from ME, but they are few. A small proportion of all ME sufferers recover spontaneously, but we do not yet know why this is the case. However, there are several researchers who believe that the less you push yourself and get PEM, the greater the chance for the body to recover.

"Jonas Bergquist collects case descriptions from patients who have clearly improved in order to learn from them. What he has so far seen as common factors is that acceptance of the disease is important for feeling better, that people have learnt to manage their individual energy levels, that they try to live as normally as possible without overexerting themselves to the point of exhaustion." (Jonas Bergqvist, Uppsala Nya Tidning, May 2022)

"Lien thinks there is reason to believe that those patients who manage to avoid triggering PEM have a greater chance of stabilising the disease: "If you constantly go into a state of aggravation, it is more difficult to stabilise the disease and get better. It's a bit like walking on a broken leg before it's healed." (Katrina Lien 23/11 2019)

"The first role of physical medicine and rehabilitation is to ensure stability of the underlying health conditions. For example, fractures often require a period of protection to ensure bone healing. Failure to protect a fracture can delay healing./..../The period of rehabilitation builds on the initial phase of protecting the fracture, which formed the foundation for being able to progress with the rest of the rehabilitation program. Full recovery is not possible without adequate first aid to address deficits in body structure and function. Similarly, we must use appropriate first aid to stabilize the energy system impairments that form the basis for PESE [PEM]. Specifically, clinicians first should aim to promote reduced use of the dysfunctional aerobic system.” (Davenport mfl, Jospt 16/2 2022)

Thus, from a research perspective, it seems to be completely contraindicated to expose oneself to multiple crashes in order to recover. Despite this, Niklas tries to normalise PEM as something good and inevitable.

Then there are also ME sufferers who say that they have become better or healthy when they have tried a treatment. But since there are no biomarkers for diagnosis and no treatments where the risks and benefits have been systematically evaluated through research that has proven to cure ME, it is impossible to know which factors have helped towards recovery.

This is why I am writing this post.

Because anyone who wants to try brain training is forced to do so at their own risk. Blindly. Without even knowing the odds in terms of risk or benefit. And that can be okay as long as people do it of their own free will with sufficient information. But someone giving potentially harmful advice to people who have no knowledge of the risks and also advocating non-evidence-based treatment is not okay. In my view, it is reprehensible whether you are a doctor or a layman. And regardless of the forum.

I believe and know that ME sufferers can take care of themselves. But as a newly diagnosed patient, you are in a very vulnerable position, and it is natural to listen to others who have been ill longer than you. To then receive a call like this from a well-known person with a large platform, which goes against everything we know through research about effort-triggered deterioration and ME, can be devastating. And a translated and more accessible version of the brain training programme delivered together with Niklas and Vanja's uncritical success story and crass view of science could mean a large-scale disaster for the ME sufferers who fall for their pitch.
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Vanja Wikström posted a very long "sorry" post on her blog the day before yesterday. No mention of ME. She later updated the post to add a couple of comments on the ME part of the issue.

Vanja Wikström: Förlåt
https://vanjawikstrom.motherhood.se/world-of-alidia/forlat/
Vanja Wikström auto-translate said:
We have also been criticised for using ME as a way to promote the project, according to some. That has never been our intention. We have worked for several years to promote ME in various ways. So for us it was obvious that we would try to contribute to this as well. We then chose to donate 5% of our royalties to research on ME, and we have also had a dedicated chat channel about ME in our Discord where you could share information, tips and experiences to try to help each other feel better. As you know, we had big dreams and ambitions for this project. And we saw an opportunity to contribute. We hoped that we would be able to make a significant amount of money on the second-hand market, and thus contribute. Now, we didn't sell out of our collection (historically, that's when the second-hand market starts, and then the possibility of royalties was removed), so we only managed to raise 500 SEK. We had hoped to donate much, much more. But this is what we got.

The fact that we donated the money to Hjärnfonden has also been criticised. We chose Hjärnfonden because it is an organisation I have worked with for a long time and have confidence in (for several years I have lent my name to Svanfeldts Coffee, which donates SEK 10 per kilo of coffee sold to Hjärnfonden). Their work includes providing grants for research on the parasympathetic nervous system and mechanisms for how an unhealthy diet can impair sleep and brain health (see research grants for 2023 here: https://www.hjarnfonden.se/forskning/utdelade-medel/ ). These are things that some consider to be pieces of the puzzle in solving the mystery of ME.

We will continue to highlight ME in the future, and hope to make a difference in some way. We feel enormously for all ME sufferers and their families and want nothing more than to contribute to more knowledge and research about this.
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@MittEremltage and medagboken share their thoughts on this:

Ett förlåt som ger frågor
https://mitteremitage.wordpress.com/2023/08/27/ett-forlat-som-ger-fragor/

Please do click through and read the whole post :thumbsup:
Google Translate, English ("A Sorry that Raises Questions")
Mitt Eremitage auto-translate said:
[...] My impression is that Niklas and Vanja have taken the opportunity to talk about WoA in contexts where they have talked about ME and vice versa. That they have used ME to lift their company and used the company to lift ME. Above all, I know that the talk of a lot of money for ME research has created hope among many patients and relatives. And when the crash came, many were disappointed.

It has been difficult, to say the least, to get answers to some questions (read more about it here). And given the importance of ME and ME research in the past, I expected to get answers in the apology post.

But in the original version of the post there was not one word about ME.

I must say that I was so damn disappointed. Because here they have kind of raised an atmosphere of "there is hope and we will save you" among seriously ill people and then when everything falls and they have to say sorry, we do not exist. In addition, at the same time Vanja has removed our highly relevant questions (link) from her Instagram and blocked a whole bunch of sick people. I feel that given that ME and ME research has been used to get people to invest, this should also be touched on in an apology. Otherwise it becomes a "sorry, but not sorry".

I therefore wrote a question to Vanja in a comment to the apology post quite soon after it was published:

"The marketing of your project has been closely linked to the fact that it would generate money for charity, including a research fund for ME. You have even said that the fundraising goal would be to employ one or more full-time researchers. I know that this gave hope to many ME sufferers and that some invested in WoA just because of this. Given that promises of ME research have been used to get people to invest, and that you have created hope for large sums of money for the research of ME sufferers, I hoped that this would also be touched upon in an apology. But not a word. Why?"

Although it has been almost two days since the text was published and Vanja has allowed over 70 comments, my question is conspicuous by its absence.
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Mitt Eremitage auto-translate said:
I find it so hard to understand how they could go from talking about DEDICATED research to ME and that they have the goal of employing several full-time researchers to donating money to research that is not at all aimed at ME. And why does Vanja talk about fundraising for ME research in WoA adverts on the blog if it's not part of their marketing? And why couldn't she just give this explanation right away when we asked about the choice of Hjärnfonden/the Brain Fund on Instagram? Why were questions about the choice of the Brain Fund and the difference between where she promised the money would go and where it went such a sensitive issue that everything we had written was removed and the ME sufferers asking the question were blocked?
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A series of quite good articles about ME in the popular illustrated weekly magazine Se & Hør.

The latest article below links to several others all featuring pwME. All harrowing. A couple of the linked stories unfortunately also include the sort of 'unhelpful beliefs & behaviours' some patients develop when they don't get proper support, e.g. buying unspecified 'essential' medicine from other countries or fundraising for unspecified 'correct treatment' in Poland (the blame for which lies with the health authorities, not the patients)
Google Translate said:
Peder Hvelplund [MP & health spokesperson for Enhedslisten] informs SE and HØR that he has followed the entire debate on the ME area and seen the treatment that ME patients in Denmark receive.

- I just have to say that I am very surprised by the treatment method that the Danish Health Authority uses in Denmark.

- Both countries such as Norway, Sweden, England and the Netherlands have a completely different approach to ME patients, where there is a group of patients that can be screened.

- Here you can see that they simply do not benefit from physical training and cognitive offers - a completely different approach is needed, Peder Hvelplund tells SE og HØR.
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https://www-seoghoer-dk.translate.g..._x_tr_hl=en-US&_x_tr_pto=wapp&_x_tr_hist=true

The health authority's responses are stunning in their stubbornness. Refuse to separate ME from Functional Disorders. Refuse to let go of the CBT/GET paradigm. Refuse to accept NICE's findings because 'they have been criticised' (notably by Danish Functional Fink)
Google Translate said:
SE og HØR has been in contact with the Danish Health Authority, which does not want to appear for an interview.

In a written response, the agency states that there is no treatment that can cure chronic fatigue syndrome/ME.

- Graduated, individually adapted physical training and cognitive behavioral therapy is the best documented treatment of the disease's symptoms.

- This is not curative treatment, but treatment which aims to reduce the negative effects of the disease as a result of lack of physical activity, say the words from the Danish Health Authority.

In addition, the agency emphasizes that the research report from NICE has met with criticism from a number of medical societies and professionals in the field.

In conclusion, the Danish Health Authority states that they consider chronic fatigue syndrome/ME to belong to the group of functional disorders, and ME will not be recognized as an independent disease, as many patients, relatives and the ME Association want.
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https://www-seoghoer-dk.translate.g..._x_tr_hl=en-US&_x_tr_pto=wapp&_x_tr_hist=true
 
Well, not really news as the books are from 2019... but Vegard Wyller has apparently written a book series with the books "Healthy" and "Ill" on the body's normal function, pathology of illnesses etc. They are apparently full of realistic patient stories.

They are in store at the local bookstore, so with some trepidation I'm interested in if they mention ME/CFS at all..
 
Midnattsol said:
Well, not really news as the books are from 2019... but Vegard Wyller has apparently written a book series with the books "Healthy" and "Ill" on the body's normal function, pathology of illnesses etc. They are apparently full of realistic patient stories.

They are in store at the local bookstore, so with some trepidation I'm interested in if they mention ME/CFS at all..
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Littered with them most likely. Wouldn't be on my christmas wish list.
 
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