News from Scandinavia

Discussion in 'Regional news' started by Kalliope, Nov 2, 2017.

  1. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    A quote from the article:
     
    cfsandmore, Sean, rvallee and 2 others like this.
  2. Sean

    Sean Moderator Staff Member

    Messages:
    7,861
    Location:
    Australia
    what happens when people are treated with mistrust.

    And worse.
     
  3. Ravn

    Ravn Senior Member (Voting Rights)

    Messages:
    2,164
    Location:
    Aotearoa New Zealand
    Paywalled, unfortunately, the little snippet we get access to is interesting. Not that often we see senior physicians going public with their ME and additionally this one worked in Aarhus, infamous for also housing Fink
    https://dagensmedicin.dk/fra-overlaege-med-fuld-fart-paa-karrieren-til-sengebundet-doegnet-rundt/
    https://dagensmedicin-dk.translate....uto&_x_tr_tl=en&_x_tr_hl=en-US&_x_tr_pto=wapp
     
    Solstice, inox, rainy and 8 others like this.
  4. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    Kan bli lättare för personer med kronisk trötthet att få sjukpenning
    https://sverigesradio.se/artikel/kroniskt-trotta-kan-fa-det-lattare-att-fa-sjukpenning
    (This problem started long before 2014, though. I know of many cases from 2008 onwards.)
     
    Last edited: Dec 15, 2022
    Dolphin, Solstice, cfsandmore and 8 others like this.
  5. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,386
    Location:
    Canada
    This is one way this could work. So far systemic denial has "worked" because it justified denying most forms of support, especially financial, which hid most of the costs. If it starts costing too much money that actually gets counted, well, there's only one way out of paying indefinitely: get to work and solve this, it's obviously treatable anyway.

    Maybe mixed with too much impact on the workforce, but it's all indirect and easy to ignore. But direct spending is counted and it can always be pointed out that they've always held the key to solving this. If they hadn't bet everything on the magical unicorn stuff, it likely would have been solved already. This cannot be said enough: all those costs are self-inflicted as a result of having refused to do the work.
     
    Solstice, Sean and Peter Trewhitt like this.
  6. RedFox

    RedFox Senior Member (Voting Rights)

    Messages:
    1,283
    Location:
    Pennsylvania
    Good point. Letting peME suffer costs nothing, but adequately supporting them is expensive. In America, the average person with multiple sclerosis incurs far more costs than the average person with ME, because there are drugs for MS, but they're very expensive.
     
    sebaaa, rvallee, Solstice and 5 others like this.
  7. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,834
    Location:
    UK
    Major knowledge gaps about exhaustion disorder
    https://medicalxpress.com/news/2022...s-exhaustion-disorder.html?deviceType=desktop

    (paper here: https://www.cambridge.org/core/jour...ed-diagnosis/7CE153EF7FF5B89F09849F36EA10CD7C)
     
    mango, RedFox, Sean and 1 other person like this.
  8. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,522
    Location:
    Norway
    Article today from TV2 about 36 year old Heidi Andresen who suffers from ME. For the last 13 years her ME has been quite stable, and she's been able to work part time and have a bit of social life as well.

    Then she deteriorated after the third dose of covid-19 vaccination.

    TV2 say they've been in contact with several ME patients who deteriorated after 2nd and 3rd dose of vaccine.

    The Norwegian Medicines Agency says there's no reason to believe that ME patients are experiencing other side effects than other people.

    Professor Nina Langeland says the benefits of the vaccine are larger than the risk of not taking it. She says that the ME symptom fatigue also is one of the most common side effect of Covid. She also says health care workers should be honest about there being side effects of vaccines, even though they are rare.

    Heidi's GP believes there is a connection between the vaccine and her deterioration. The doctor who is anonymous says:
    - Many ME patients experience deterioration in symptoms after a virus infection. I believe this type of patients have a sensitive immune system, which can make them react stronger to a vaccine than what is to be expected.

    TV2: Blei sjukare etter vaksine: - Me vil berre bli tatt på alvor
    google translation: Became sicker after vaccination: - I just want to be taken seriously
     
  9. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

    Messages:
    3,981
    Great shame there is no systematic recording of people with ME’s response to the Covid vaccine. Anecdotal reports like this are important, so well done to this paper for being up front about this. It has long been reported that some of us respond badly to vaccines but also possibly some even respond positively.

    For people with ME and presumably those with Long Covid that presents like ME, if they are to make informed choices about vaccinations we really need at least some idea of the percentage risks. If we are as seem likely seeing higher rates of adverse reactions in people with ME wouldn’t also it make sense to try to find out what are the differences between those that respond badly and those that do not. This may help identify those that should consider avoiding vaccination despite the risk that involves.
     
    Amw66, RedFox, NelliePledge and 2 others like this.
  10. Dolphin

    Dolphin Senior Member (Voting Rights)

    Messages:
    5,646
  11. Andy

    Andy Committee Member

    Messages:
    22,814
    Location:
    Hampshire, UK
    Copying this here in case anybody would be happy to be interviewed by Mike.
     
    inox, Ariel, Kalliope and 3 others like this.
  12. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    The Swedish Society of Medicine (Svenska Läkaresällskapet) is arranging their very first symposium on long covid rehab today, with both national and international experts.

    Doctor and activist Lisa Norén is representing the Swedish Covid Association at the symposium. She tweeted:
    Read more on Norén's Twitter:
    The Swedish Society of Medicine is "the independent scientific and professional organisation for Swedish doctors, medical students, and allied healthcare professionals."
     
    Last edited: Jan 13, 2023
    MittEremltage, Sean, Lilas and 4 others like this.
  13. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    Läkartidningen/the Journal of the Swedish Medical Association is again organising a webinar for medical professionals on burnout, ME and long covid. (Has been running yearly since 2018, if I remember correctly?)

    Stressrelaterat utmattningssyndrom, ME/CFS och postcovid
    Fredag 17 februari 2023, klockan 13:00
    Webbseminarium via Zoom
    https://events.magnetevents.com/Event/stressrelaterat-utmattningssyndrom-mecfs-och-postcovid-50576/
     
  14. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    Two articles in the Swedish newspaper DN today, commenting on companies selling expensive gut microbiome self-tests and advice that lack scientific evidence. ME is mentioned.

    Dyra tester och tveksamma råd: Så tjänar företagen pengar på tarmflora
    https://www.dn.se/sverige/dyra-tester-och-tveksamma-rad-sa-tjanar-foretagen-pengar-pa-tarmflora/
    Företaget: “Det är möjligt att vi var lite naiva i början”
    https://www.dn.se/sverige/foretaget-det-ar-mojligt-att-vi-var-lite-naiva-i-borjan/
     
    Hutan, Midnattsol, sebaaa and 6 others like this.
  15. Trish

    Trish Moderator Staff Member

    Messages:
    54,800
    Location:
    UK
  16. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    Johanna har skrivit en bok om ME – "Vården greppar inte vad ME är"
    https://sverigesradio.se/artikel/johanna-har-skrivit-en-bok-om-me-varden-greppar-inte-vad-me-ar
     
    Hutan, Lilas, RedFox and 4 others like this.
  17. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
  18. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    The regional council assembly (regionfullmäktige) in Region Örebro, Sweden, recently rejected a motion to develop the region's compentency regarding ME.

    The minutes of the meeting:
    https://politiskamoten.regionorebrolan.se/committees/regionfullmaktige/mote-2023-02-13

    Video recording of the debate:
    https://secure.quickchannel.com/qc/create/mainshow.asp?id=5y8j7b9

    Why they rejected the motion:
     
    Hutan, RedFox, MittEremltage and 4 others like this.
  19. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    13,386
    Location:
    Canada
    That's some galaxy brain logic here.

    "Let's develop skills and experience on this issue"
    "No, we can't, we don't have skills or experience on this issue"

    Shmart stuff. Truly the work of geniuses at being experts and stuff.

    Just say you don't want to and can't be bothered to care. We all know this is what you mean, that you can't recognize your own failures and would rather keep on failing, harming people, than admitting to it and having to change.
     
    Hutan, Lilas, Solstice and 6 others like this.
  20. mango

    mango Senior Member (Voting Rights)

    Messages:
    2,759
    Hanne Kjöller (Swedish bps extremist, nurse, columnist) comments on a tv programme about the brain.

    Vi älskar att prata om vad som gör oss sjuka – det gör oss inte friskare
    https://www.dn.se/ledare/hanne-kjol...-som-gor-oss-sjuka-det-gor-oss-inte-friskare/
    Very frustrating and sad that a serious paper like DN keeps publishing this kind of ignorant, dismissive bs... :grumpy:
     
    Hutan, Midnattsol, Sean and 5 others like this.

Share This Page