I've made a comment about the interview on the DecodeME in the Media thread. Thanks to Chris for the good interview.
Concerning evidence of the flourishing of the FND concept as a bucket for a broad range of undiagnosed conditions in New Zealand
Grant recipient of NZ govt Health Research Council 260K award
significant abuse and online threats directed at Mel Abbott, as well as the negative treatment of some of her clients, after sharing their recovery stories or promoting The Switch programme.
They are getting a lot of negative feedback on their statement on their Facebook page announcing this statement. They have thanked people for their comments and are going to revise their statement after further discussion with the executive committee.ANZMES statement on reports of:
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ANZMES Statement on Sharing Improvement and Recovery Stories
This statement addresses the sharing of improvement and recovery stories in general but also in relation to a New Zealand based private business, Empower Therapies, owned and operated by Mel Abbott…anzmes.org.nz
Yes, I have communicated that to them and told them I think the members should be able to see the proof of this....significant abuse and online threats directed at Mel Abbott, as well as the negative treatment of some of her clients, after sharing their recovery stories or promoting The Switch programme.
That claim that needs very robust scrutiny indeed. Evidence, please, and it had better be good. And if it is, then they should be taking it to the police, not chucking a tanty.
If Ms Abbott and her ilk are peddling reckless profiteering goo then those on the receiving end of it have a right to point that out, and ask they stop doing it.
I agree on a quick read through it does look pretty good. What sort of feedback was ignored? I would like it to say something about severity levels, very severe ME/CFS and most pwME not being able to work or attend education.Finally live, our national health authority’s updated public information on ME/CFS. Not perfect but quite passable overall (even though they ignored some feedback...)
Claiming the right to punch someone in the face doesn't come with the right to claim that no one can object to being punched in the face, especially when they make it very clear they do not want, have had it happened, complained about it, and somehow some people are still going around claiming, and being granted, the right to continue doing this....significant abuse and online threats directed at Mel Abbott, as well as the negative treatment of some of her clients, after sharing their recovery stories or promoting The Switch programme.
That claim that needs very robust scrutiny indeed. Evidence, please, and it had better be good. And if it is, then they should be taking it to the police, not chucking a tanty.
If Ms Abbott and her ilk are peddling reckless profiteering goo then those on the receiving end of it have a right to point that out, and ask they stop doing it.
Points I emphasised in behind-the-scenes response discussions.I don't even understand the point of asking for recovery or improvement stories. What is even the point here, other than in promoting quackery? […]